Competence Network

Structures and processes

Central services

The competence network’s central bodies comprise its central office in Berlin, the Coordinating Centre for Clinical Trials (KKS) at the Charité University Hospital Berlin, the Central Biometrics Unit in Magdeburg and the Medical Informatics Department of Göttingen University (CIOffice). read more …

Administrative bodies

The competence network’s administrative bodies comprise the management board, the steering committee and the scientific advisory board. read more …

Databases maintained by the Competence Network

The Competence Network for Congenital Heart Defects has an efficient infrastructure that facilitates multi-centre recording of patient data for research and medical care purposes. read more …

Data protection and pseudonymisation

Data recorded by both the Competence Network for Congenital Heart Defects and the National Register for Congenital Heart Defects are personally identifiable, not anonymous. Consequently, data protection is very important. The competence network has its own data protection concept, which is approved by all the German Federal States. read more …