News

15.11.2011 | Press release

Women’s hearts need earlier help

A team of researchers at the Competence Network for Congenital Heart Defects gathered gender-specific reference values for tetralogy of Fallot and realized that women have been disadvantaged in treatment practices to date.  read more …

10.10.2011 | News

German National Quality Assurance gets off to a good start

After a two-year pilot phase, the German National Quality Assurance of Congenital Heart Defects started on 1 October 2011.   read more …

10.10.2011 | Press release

Researchers Link Gene Mutations to Ebstein’s Anomaly

Researchers from Amsterdam, Berlin and Newcastle found mutations in Ebstein's anomaly  read more …

04.11.2010 | Press release, News

Prenatal ultrasound too often fails to detect congenital heart defects

Although almost all pregnant women in Germany undergo prenatal screening for organic malformations, the PAN study reports that there is a greater than average likelihood of congenital heart defects remaining undetected.  read more …

22.02.2010 | News

Milestone in standards of care for individuals with congenital heart defects

The German societies of cardiac surgeons and paediatric cardiologists have heartily welcomed the announcement of the decision by the Joint Federal Committee to lay down binding quality standards and structures in respect of cardiac surgery for children and young people.   read more …

Patient information

Living with a heart defect

One in every hundred babies is born with a heart defect – there are currently around 300,000 people in Germany living with this condition. However, having a congenital heart defect can sometimes present major challenges, and it certainly throws up a lot of questions. How resilient is someone who has a heart defect? Can they have children despite their condition? And are heart defects curable?

Corience is an information portal dedicated to congenital heart defects, which aims to help answer such questions. The website provides independent information on the different heart malformations that can occur, their treatment, and how to live with a heart defect. In-depth reports, personal stories, interviews with experts and background articles all provide practical hints and tips to make living with the condition a little easier. On our Patients page, we’ve collated a list of topics that are dealt with on the Corience website.

read more …

Become a member today!

The Competence Network for Congenital Heart Defects is accepting new members.  read more …

Independent information on congenital heart defects. read more ...