Dear Patients and Families,

Living with a congenital heart defect can present major challenges and throw up a lot of questions. With Corience, we’ve created a website we hope will help you to answer some of these questions. Whether you’re the parents of a heart child, a teenager or an adult, Corience will provide you with the information you need. On this page, you’ll find a list of the different topics that are covered on the Corience website.

Our Contacts section contains links to relevant organisations and self-help groups, and we’ve also compiled a useful list of upcoming events, as well as suggested books and films that deal with the subject of congenital heart defects in a variety of different ways.

Welcome to our site!


Ulrike Bauer

Executive Manager of the Competence Network for Congenital Heart Defects and the German National Register for Congenital Heart Defects


The words ring in your ear. The doctor looks worried as he repeats “Your child has a congenital heart defect” and then you stop listening. A moment later your world falls apart. Reading and understanding is a way to diminish the anxiety. Here you will find a lot of information about congenital heart defects and what it is like to live with a heart child. more...


Whether you feel that your heart defect places restrictions on your life, or you don’t think about it at all, it’s time for a wake-up call! If you have no clue about your congenital heart defect, don’t worry, you are not alone. Many teenagers know very little about their disease. The time has come, however, to find out more about your heart and health. You can do it! more...


Your heart defect will always be a part of you. Here, you can read up on issues relevant to your heart defect and hopefully find answers to most of your questions, such as: Can I have my own children? How should I plan my career? Can I play sport? The more you know about your heart condition, the easier it will be to take responsibility for your health. more...