Self-help groups

AKIK Aktionskomitee Kind im Krankenhaus Bundesverband e. V.
(nation-wide action group to help children in hospital)

Aktion Kinderherz e. V., Düsseldorf
(member of the Federal Association for Children with Heart Diseases)

Bundesverband für Körper- und Mehrfachbehinderte e. V.
(federation of self-help groups and professional association representing the interests of the disabled; provides support to those wishing to set up a self-help group or association)

Bundesverband der Organtransplantierten e. V. (BDO)
(non-profit self-help association for transplant patients)

Bundesverband Herzkranke Kinder e. V.
(Federal Association for Children with Heart Diseases – umbrella organisation uniting numerous parents’ associations and self-help groups for patients with congenital heart defects)

Deutsche Herzstiftung e. V.
(German Heart Foundation)

Elterninitiative Herzkranker Kinder e. V., Tübingen (ELHKE)
(member of the Federal Association for Children with Heart Diseases)

Elterninitiative Herzkranker Kinder, Köln e. V.
(member of the Federal Association for Children with Heart Diseases)

Elterninitiative herzkranker Kinder und Jugendlicher Bonn e. V.
(non-profit support group for children and adolescents with heart diseases; member of the Federal Association for Children with Heart Diseases)

Elterninitiative herzkranker Kinder, Dortmund / Kreis Unna e. V.
(member of the Federal Association for Children with Heart Diseases)

Herzkind e. V.
(non-profit self-help organisation providing information and advice to children and adults with heart diseases, and their families)

Herz-Kinder-Hilfe Hamburg e. V.
(member of the Federal Association for Children with Heart Diseases)

Herzkinder Unterland e. V.
(member of the Federal Association for Children with Heart Diseases)

Herzklopfen Elterninitiative Herzkranke Kinder Südbaden e. V.
(self-help initiative run by parents with children suffering from a variety of heart diseases; member of the Federal Association for Children with Heart Diseases)

Herzkrankes Kind Aachen e. V.
(member of the Federal Association for Children with Heart Diseases)

Herzkranke Kinder e. V., Münster
(member of the Federal Association for Children with Heart Diseases)

Interessengemeinschaft Das Herzkranke Kind e. V. (IDHK)
(association providing support to children with heart diseases and their parents, with contact groups in Bonn, Düsseldorf, Oberhausen, Recklinghausen, Stuttgart; member of the Federal Association for Children with Heart Diseases)

JEMAH e. V.
(association for young people and adults with congenital heart defects)

Marfan Hilfe (Deutschland) e.V.
(association for people with Marfan syndrome and other diseases of the microfibrillary network)

Kinder-Herz-Hilfe e. V., Kiel
(support group working in association with the Clinic for Paediatric Cardiology at the University of Kiel; member of the Federal Association for Children with Heart Diseases)

Kinderherzliga e.V.
(initiative for children, adolescents and young adults with congenital heart defects; member of the Federal Association for Children with Heart Diseases)

Kinderherzstiftung in Deutsche Herzstiftung e.V.
(provides information and support to children with heart diseases and their parents)

Kindernetzwerk e. V.
(platform for children with chronic and rare diseases or disabilities)

LEONA e. V.
(association for the parents of children with chromosomal defects)

Ulmer Herzkinder e. V.
(parents’ association for children with heart diseases; member of the Federal Association for Children with Heart Diseases)

Kinderherzen heilen e.V., Gießen
(parents’ association for children with heart diseases; member of the Federal Association for Children with Heart Diseases)