Patients

Living with a congenital heart defect

Corience contains detailed explanations of different types of congenital heart defects, diagnosis and treatment as well as useful tips on how to make life with a heart defect easier. Parents, teenagers and adults will find interviews with experts, personal stories, recent research, and much more.

Parents

The words ring in your ear. The doctor looks worried as he repeats “Your child has a congenital heart defect” and then you stop listening. A moment later your world falls apart. Reading and understanding is a way to diminish the anxiety. Here you will find a lot of information about congenital heart defects and what it is like to live with a heart child. more...

Teenager

Whether you feel that your heart defect places restrictions on your life, or you don’t think about it at all, it’s time for a wake-up call! If you have no clue about your congenital heart defect, don’t worry, you are not alone. Many teenagers know very little about their disease. The time has come, however, to find out more about your heart and health. You can do it! more...

Adults

Your heart defect will always be a part of you. Here, you can read up on issues relevant to your heart defect and hopefully find answers to most of your questions, such as: Can I have my own children? How should I plan my career? Can I play sport? The more you know about your heart condition, the easier it will be to take responsibility for your health. more...

Almost any young woman, whatever her state of health, sooner or later feels the desire to give birth to a child of her own. The apprehension and fear of missing out on an essential experience in a woman’s life often drives patients with a heart defect, their parents, and their partners to ask themselves certain questions at a relatively early age: Is it safe for me/her to become pregnant? Will I/she be capable of giving birth to a healthy child? Even if, for medical reasons, doctors sometimes suggest to their chronically ill female heart patients that this would not be a good idea, it nevertheless happens that the patient arrives one day for a consultation, proudly announcing: “I am pregnant”. Unfortunately, in such cases, the pregnancy often ends in a miscarriage, or the expectant mother’s health deteriorates to the point of threatening her own life.

We have written an article that weighs up the factors influencing the decision by women suffering from a heart complaint to go ahead with a pregnancy or renounce this possibility. For it is only by knowing the dangers that difficult situations can be avoided or surmounted.

read more …