Klinische Forschung

Abd El Rahman MY, Rentzsch A, Scherber P, Mebus S, Miera O, Balling G, Böttler P, Dubowy KO, Farahwaschy B, Hager A, Kreuder J, Peters B, Berger F, Schulze-Neick I, Abdul-Khaliq H.
Effect of bosentan therapy on ventricular and atrial function in adults with Eisenmenger syndrome. A prospective, multi-center study using conventional and Speckle tracking echocardiography
Clin Res Cardiol. 2014 Sep;103(9):701-10.

Albers S, Elshoff JP, Volker C, Richter A, Laer S.
HPLC quantification of metoprolol with solidphase extraction for the drug monitoring of pediatric patients
Biomed Chromatogr 2005; 19:202-207.

Albers S, Meibohm B, Mir TS, Läer S.
Population pharmacokinetics and dose simulation of carvedilol in paediatric patients with congestive heart failure.
Br J Clin Pharmacol. 2008 Apr;65(4):511-22. Epub 2007 Nov 8.

Albers S, Mir TS, Haddad M, Laer, S.
N-Terminal pro-brain natriuretic peptide: normal ranges in the pediatric population including method comparison and interlaboratory variability
Clin Chem Lab Med 2006; 44:80-85.

Apitz C, Gorenflo M, Kozlik-Feldmann R, Ewert P, Mebus S, Pujol C, Bauer U, Kaemmerer H.
Die pathophysiologischen und -biologischen Grundlagen der pulmonalarteriellen Hypertonie bei angeborenen Herzfehlern
Med Welt 2013. 64(5):287-291.

Cebotari S, Tudorache I, Ciubotaru A, Boethig D, Sarikouch S,  Goerler A, Lichtenberg A, Cheptanaru E, Barnaciuc S, Cazacu A, Maliga O, Repin O, Maniuc L, Breymann T, Haverich A.
Use of Fresh Decellularized Allografts for Pulmonary Valve Replacement May Reduce the Reoperation Rate in Children and Young Adults : Early Report
Circulation 2011, 124:S1 15-S123.

Diller GP, Körten MA, Bauer UMM, Miera O, Tutarel O, Kaemmerer H, Berger F, Baumgartner H..
Current therapy and Outcome of Eisenmenger Syndrome: Data of the German National Register for Congenital Heart Defects.
Eur Heart J 2015 (accepted)

Dubowy KO, Baden W, Bernitzki S, Peters B.
A practical and transferable new protocol for treadmill testing of children and adults.
Cardiol Young 18(6):615-623.

Dubowy, KO, Bernitzki S, Peters, B.
Objektive Belastbarkeit von Patienten mit angeborenen Herzfehlern.
Die Medizinische Welt 2006; 57(4):158-163.

Heise G, Lemmer J, Weng Y, Hübler M, Alexi-Meskishvili V, Böttcher W, Hetzer R, Berger F, Stiller B.
Biomarker responses during mid-term mechanical cardiac support in children.
J Heart Lung Transplant. 2008; 27(2):150-7.

Hui W, Abd El Rahman MY, Schuck R, Rentzsch A, Yigitbasi M, Ovroutski S, Lunze F, Berger F, Abdul-Khaliq H..
Diastolic asynchrony and myocardial dysfunction in patients with univentricular heart after Fontan operation
J Echocardiogr, 11:130–137

Kaemmerer H, Mebus S, Apitz C, Kozlik-Feldmann R, Pujol C, Ewert P, Bauer U, Pittrow D, Gorenflo M..
Klinische Aspekte und Therapieoptionen bei angeborenen Herzfehlern mit pulmonal-arterieller Hypertonie
Med Welt 2013, 64(5):292-299.

Kaemmerer H, Mebus S, Schulze-Neick I, Eicken A, Trindade PT, Hager A, Oechslin E, Niwa K, Lang I, Hess J.
The Adult Patient with Eisenmenger Syndrome: a medical update after Dana Point Part I: Epidemiology, Clinical Aspects and Diagnostic Options
Current Cardiology Reviews 2010; Nov;6(4):343-55.

Klimes K, Ovroutski S, Abdul-Khaliq H, Ewert P, Alexi-Meskishvili V, Kuehne T, Gutberlet M, Berger F.
Exercise capacity reflects ventricular function in patients having the Fontan circulation.
Cardiol Young. 2009; 15:1-6.

Koenigstein K, Raedle-Hurs T, Hosse M, Hauser M, Abdul-Khaliq H.
Altered Diastolic Left Atrial and Ventricular Performance in Asymptomatic Patients After Repair of Tetralogy of Fallot.
Pediatr Cardiol. 2013 Apr;34(4):948-53.

Kutty S, Kuehne T, Gribben P, Reed E, Danford DA, Beerbaum P, Sarikouch S.
Ascending aortic and main pulmonary artery areas derived from cardiovascular magnetic resonance as reference values for normal subjects and repaired tetralogy of Fallot.
Circ Cardiovasc Imaging. 2012 Sep 1;5(5):644-51.

Lemmer J, Heise G, Rentzsch A, Boettler P, Kuehne T, Dubowy KO, Peters B, Lemmer B, Hager A, Stiller B.
Right ventricular function in grown-up patients after correction of congenital right heart disease
Clin Res Cardiol 2011; 100(4):289-296.

Lemmer J, Stiller B, Heise G, Alexi-Meskishvili V, Hübler M, Weng Y, Berger F.
Mid-term follow-up in patients with diaphragmatic plication after surgery for congenital heart disease.
Intensive Care Med. 2007; 33(11):1985-92.

Lunze K, Gilbert N, Mebus S, Miera O, Fehske W, Uhlemann F, Muhler EG, Ewert P, Lange PE, Berger F, Schulze-Neick I.
First experience with an oral combination therapy using bosentan and sildenafil for pulmonary arterial hypertension.
Eur J Clin Invest. 2006 Sep;36 Suppl 3:32-8.

Mebus S, Schulze-Neick I, Oechslin E, Niwa K, Trindade PT, Eicken A, Hager A, Lang I, Hess J, Kaemmerer H.
The Adult Patient with Eisenmenger Syndrome: a medical update after Dana Point Part II: Medical Treatment – Study Results.
Current Cardiology Reviews 2010; Nov;6(4):356-62.

Mi YP, Abdul-Khaliq H.
The pulsed Doppler and Tissue Doppler derived septal E/e´ ratio is significantly related to invasive measurement of ventricular end-diastolic pressure in biventricular rather than univentricular physiology in patients with congenital heart disease.
Clin Res Cardiol. 2013 Aug;102(8):563-70.

Miera O, Farahwashy B, Schulze-Neick I, Berger F.
Medikamentöse Therapie des Lungenhochdrucks bei Patienten mit angeborenen Herzfehlern.
Dtsch Med Wochenschr 133(6):209-211.

Mir TS, Flato M, Falkenberg J, Haddad M, Budden R, Weil J, Albers S, Laer S.
Plasma concentrations of N-terminal brain natriuretic peptide in healthy children, adolescents, and young adults: effect of age and gender.
Pediatr Cardiol 2006; 27:73-77.

Mueller GC, Sarikouch S, Beerbaum P, Hager A, Dubowy KO, Peters B, Mir TS.
Health-Related Quality of Life Compared With Cardiopulmonary Exercise Testing at the Midterm Follow-up Visit After Tetralogy of Fallot Repair: A Study of the German Competence Network for Congenital Heart Defects.
Pediatr Cardiol. 2013 Jun;34(5):1081-7.

Oechslin E, Mebus S, Schulze-Neick I, Niwa K, Trindade PT, Eicken A, Hager A, Lang I, Hess J, Kaemmerer H.
The Adult Patient with Eisenmenger Syndrome: a medical update after Dana Point Part III: Specific Management and Surgical Aspects.
Current Cardiology Reviews 2010; Nov;6(4):363-72.

Orwat S, Diller GP, Kempny A, Radke R, Peters B, Kühne T, Boethig D, Gutberlet M, Dubowy KO, Beerbaum P, Sarikouch S, Baumgartner H, Q3 for the German Competence Network for Congenital Heart Defects Investigators.
Myocardial deformation parameters predict outcome N1 in patients with repaired tetralogy of Fallot.
Heart 2015 (accepted)

Riesenkampff E, Al-Wakeel N, Kropf S, Stamm C, Alexi-Meskishvili V, Berger F, Kuehne T..
Surgery impacts right atrial function in tetralogy of Fallot.
J Thorac Cardiovasc Surg. 2014 Apr;147(4):1306-11.

Riesenkampff E, Mengelkamp L, Mueller M, Kropf S, Abdul-Khaliq H, Sarikouch S, Beerbaum P, Hetzer R, Steendijk P, Berger F, Kuehne T.
Integrated analysis of atrio-ventricular interaction in tetralogy of Fallot.
Am J Physiol Heart Circ Physiol 2010; 299:364-371.

Sarikouch S, Boethig D, Peters B, Kropf S, Dubowy KO, Lange P, Kuehne T, Haverich A and Beerbaum P.
Poorer Right Ventricular Systolic Function and Exercise Capacity in Females After Repair of Tetralogy of Fallot: A Gender Comparison of Standard Deviation Scores Based on Sex-Specific Reference Values in Healthy Controls.
Circ Cardiovasc Imaging. 2013 Nov;6(6):924-33.

Schuck R, Abd El Rahman MY, Rentzsch A, Hui W, Weng Y, Alexi-Meskishvili V, Lange PE, Berger F, Abdul-Khaliq H..
Altered Right Ventricular Function in the Long-Term Follow-up Evaluation of Patients After Delayed Aortic Reimplantation of the Anomalous Left Coronary Artery From the Pulmonary Artery
Pediatr Cardiol. 2014 Mar;35(3):530-5.

Schulze-Neick I.
Behandlung der pulmonal-arteriellen Hypertension (PAH) bei Erwachsenen mit angeborenem Herzfehler (EMAH).
Die Medizinische Welt 2006; 57(4):164-170.

Schulze-Neick I.
Pulmonalarterielle Hypertonie bei angeborenen Herzfehlern.
Deutsche Medizinische Wochenschrift 2006; 131(Suppl 9):322-324.

Epidemiologische Forschung

Abdul-Khaliq H, Berger F.
Die Diagnose wird häufig zu spät gestellt.
Deutsches Ärzteblatt; 108(31-32): A1683-1684.

Bauer U, Niggemeyer E, Vigl M, Lange PE.
Angeborene Herzfehler – Epidemiologie, Langzeitverlauf und Lebensqualität.
Die Medizinische Welt 2006; 57(4):171-175.

Bauer U, Specht K.
Schwangerschaft und Kontrazeption bei Frauen mit angeborenem Herzfehler
Herzmedizin 2011; 28(2):70-74.

Bauer U, Specht K.
Schwangerschaft und Kontrazeption bei Frauen mit angeborenem Herzfehler – Teil 2
Herzmedizin 2011; 3:40-44.

Helm P, Körten MA, Abdul-Khaliq H, Baumgartner H, Kececioglu D, Bauer UMM..
Representativeness of the German National Register for Congenital Heart Defects. A clinically oriented analysis.
Cardiol Young

Kaemmerer M, Vigl M, Seifert-Klauss V, Nagdymann N, Bauer U, Schneider KTM, Kaemmerer H.
Counseling Reproductive Health Issues in Women with Congenital Heart Disease.
Clin Res Cardiol. 2012 Nov;101(11):901-907.

Lesch W, Specht K, Lux A, Frey M, Utens E, Bauer U.
Disease-specific knowledge and information needs of young patients with congenital heart disease.
Cardiol Young. 2014 Apr;24(2):321-30.

Lindinger A, Schwedler G, Hense HW .
Angeborene Herzfehler in Deutschland. Prävalenzen im ersten Lebensjahr und Assoziationen mit genetischen und extrakardialen Erkrankungen.
Kardiologe 5:325-333.

Lindinger A, Schwedler G, Hense HW.
Prevalence of Congenital Heart Defects in Newborns in Germany: Results of the First Registration Year of the PAN Study (July 2006 to June 2007).
Klinische Pädiatrie 2010; 222:321-330.

Neuner B, Busch MA, Singer S, Moons P, Wellmann J, Bauer U, Nowak-Göttl U, Hense HW.
Sense of Coherence as a Predictor of Quality of Life in Adolescents With Congenital Heart Defects: A Register-Based 1-Year Follow-Up Study.
J Dev Behav Pediatr 2011; Feb 15; 32:316 –327.

Schmaltz A.
Transition – Übergang von der Kinder- zur Erwachsenenmedizin am Beispiel angeborenen Herzfehler. Epidemiologie und Versorgungsstrukturen
Herzmedizin 2011; 28(2):54-59.

Schwedler G, Lindinger A, Lange PE, Sax U, Olchvary J, Peters B, Bauer U, Hense HW.
Frequency and spectrum of congenital heart defects among live births in Germany: A study of the competence network for congenital heart defects.
Clin Res Cardiol 2011; 100(12):1111-7.

Vigl M, Hager A, Bauer U, Niggemeyer E, Wittstock B, Koehn FM, Hess J, Kaemmerer H.
Sexuality and Subjective Wellbeing in Male Patients with Congenital Heart Disease.
Heart 2009; 95(14):1179-1183.

Vigl M, Kaemmerer M, Seifert-Klauss V, Niggemeyer E, Nagdyman N, Trigas V, Bauer U, Schneider KTM, Berger F, Hess J, Kaemmerer H.
Contraception in Women with Congenital Heart Disease
Am J Cardiol 2010; 106(9): 1317-1321.

Vigl M, Kaemmerer M,Niggemeyer E, Nagdyman N, Seifert-Klaus V, Trigas V, Bauer U, Schneider KT, Berger F, Hess J, Kaemmerer H.
Sexuality and Reproductive Health in Women with Congenital Heart Disease
Am J Cardiol. 2010; 105(4):538-41.

Vigl M, Niggemeyer E, Hager A, Schwedler G, Kropf S, Bauer U.
The importance of socio-demographic factors for the quality of life of adults with congenital heart disease
Quality of Life Research 2011; 20(2):169-177.

Genetische Forschung

Al Turki S, Manickaraj AK, Mercer CL, Gerety S, Hitz MP, Lindsay S, D'Alessandro LCA, Swaminathan J, Bentham J, Arndt AK, Low J, Breckpot J, Gewillig M, Thienpont B, Abdul-Khaliq H, Harnack C, Hoff K, Kramer HH, Schubert S, Siebert R, Toka O, Cosgrove C, Watkins H, Lucassen AM, O'Kelly IM, Salmon AP, Bu'Lock FA, Granados-Riveron J, Setchfield K, Thornborough C, Brook JD, Mulder B, Klaassen S, Bhattacharya S, Devriendt K, FitzPatrick DF, UK10K, Wilson DI, Mital S, Hurles ME.
Rare variants in NR2F2 cause congenital heart defects in humans
Am J Hum Genet. 2014 Apr 3;94(4):574-85.

Arndt AK, Schafer S, Drenckhahn JD, Sabeh MK, Plovie ER, Caliebe A, Klopocki E, Musso G, Werdich AA, Kalwa H, Heinig M, Padera RF, Wassilew K, Bluhm J, Harnack C, Martitz J, Barton PJ, Greutmann M, Berger F, Hubner N, Siebert R, Kramer HH, Cook SA, MacRae CA, Klaassen S.
Fine Mapping of the 1p36 Deletion Syndrome Identifies Mutation of PRDM16 as a Cause of Cardiomyopathy.
Am J Hum Genet. 2013 Jul 11;93(1):67-77.

Bansal V, Dorn C, Grunert M, Klaassen S, Hetzer R, Berger F, Sperling SR.
Outlier-Based Identification of Copy Number Variations Using Targeted Resequencing in a Small Cohort of Patients with Tetralogy of Fallot
PLoS One. 2014 Jan 6;9(1):e85375.

Cebotari S, Tudorache I, Ciubotaru A, Boethig D, Sarikouch S, Goerler A, Lichtenberg A, Cheptanaru E, Barnaciuc S, Cazacu A, Maliga O, Repin O, Maniuc L, Breymann T, Haverich A.
Use of Fresh Decellularized Allografts for Pulmonary Valve Replacement May Reduce the Reoperation Rate in Children and Young Adults: Early Report.
Circulation 2011; 124(11 Suppl):S115-23.

Engelen K, Postma AV, van de Meerakker J, Roos-Hesselink JW, Helderman-van den Enden AT, Vliegen HW, Rahman T, Probst S, Baars MJH, Bauer U, Pickardt T, Sperling SR, Berger F, Moorman AFM, Thierfelder L, Keavney B, Goodship J, Klaassen S, Mulder BJM.
Ebstein anomaly may be caused by mutations in the sarcomere protein gene MYH7
Netherlands Heart Journal. 2013 Mar;21(3):113-7.

Goebel JW, Pickardt P, Bedau M, Fuchs M, Lenk C, Paster I, Spranger TM, Stockter U, Bauer U, Cooper DN, Krawczak M.
Legal and ethical consequences of international biobanking from a national perspective: the German BMB-EUCoop project.
European Journal of Human Genetics (2009), 1-4.

Kiefer K, Lee J, Haidar A, Miró MM, Akkan CK, Veith M, Aktas OC, Abdul-Khaliq H..
Alignment of human cardiomyocytes on laser patterned biphasic core/shell nanowire assemblies.
Nanotechnology 25(49):495101

Kuehne T, Gleason K, Saeed M, Turner D, Weil J, Teitel DF, Higgins CB, Moore P.
Combined pulmonary stenosis and insufficiency preserves myocardial contractility in the developing heart of growing swine at midterm follow-up.
Journal of Applied Physiology 2005; 99(4):1422-1427.

Moosmann J, Uebe S, Dittrich S, Rüffer A, Ekici AB, Toka O..
Novel Loci for non-syndromic coarctation of the aorta in sporadic and familial cases.
PLoS One. 2015 May 18;10(5):e0126873.

Postma AV, van Engelen K, van de Meerakker J, Rahman T, Probst S, Baars MJ, Bauer U, Pickardt T, Sperling SR, Berger F, Moorman AF, Mulder BJ, Thierfelder L, Keavney B, Goodship J, Klaassen S.
Mutations in the sarcomere gene MYH7 in Ebstein anomaly.
Circ Cardiovasc Genet. 2011; 4(1):43-50.

Tagariello A, Breuer C, Birkner Y, Schmidt S, Koch A, Cesnjevar R, Rüffer A, Dittrich S, Schneider H, Winterpacht A, Sticht H, Dötsch J, Toka O.
Functional Null Mutations in the Gonosomal Homologue Gene TBL1Y are Associated with Non-syndromic Coarctation of the Aorta.
Current Molecular Medicine; 12(2):199-205.

Vermeer AM, van Engelen K, Postma AV, Baars MJ, Christiaans I, De Haij S, Klaassen S, Mulder BJ, Keavney B..
Ebstein anomaly associated with left ventricular noncompaction: an autosomal dominant condition that can be caused by mutations in MYH7.
Am J Med Genet C Semin Med Genet. 2013 Aug;163C(3):178-84.

Bildgebende Verfahren

Abd El Rahman MY, Hui W, Schuck R, Rentzsch A, Berger F, Gutberlet M, Abdul-Khaliq H.
Regional Analysis of Longitudinal Systolic Function of the Right Ventricle After Corrective Surgery of Tetralogy of Fallot Using Myocardial Isovolumetric Acceleration Index
Pediatr Cardiol. 2013 Dec;34(8):1848-53.

Abd El Rahman, Haase D, Rentzsch A, Olchvary J, Schäfers HJ, Henn W, Wagenpfeil S, Abdul-Khaliq H..
Left ventricular systolic dysfunction in asymptomatic marfan syndrome patients is related to the severity of gene mutation: insights from the novel three dimensional speckle tracking echocardiography.
PLoS One. 2015 Apr 22;10(4):e0124112.

Beerbaum P, Barth P, Kropf S, Sarikouch S, Kelter-Kloepping A, Franke D, Gutberlet M, Kuehne T.
Cardiac function by MRI in congenital heart disease: impact of consensus training on interinstitutional variance.
J Magn Reson Imaging. 2009; 30(5):956-66.

Beerbaum P, Sarikouch S, Laser KT, Greil G, Burchert W, Körperich H.
Coronary anomalies assessed by whole-heart isotropic 3D magnetic resonance imaging for cardiac morphology in congenital heart disease.
J Magn Reson Imaging. 2009; 29(2):320-7.

Bodhey NK, Beerbaum P, Sarikouch S, Kropf S, Lange P, Berger F, Anderson RH, Kuehne T.
Functional Analysis of the Components of the Right Ventricle in the Setting of Tetralogy of Fallot.
Circ Cardiovasc Imaging 2008; 1(2):141-7.

Boethig D, Ernst F, Sarikouch S, Norozi K, Lotz J, Opherk JP, Meister M, Breymann T.
Physical stress testing of bovine jugular veins using magnetic resonance imaging, echocardiography and electrical velocimetry.
Interact Cardiovasc Thorac Surg. 2010; 10(6):877-83.

Boettler P, Hartmann M, Watzl K, Maroula E, Schulte-Moenting J, Knirsch W, Dittrich S, Kececioglu D.
Heart rate effects on strain and strain rate in healthy children.
J Am Soc Echocardiogr. 2005 Nov;18(11):1121-30.

Etoom Y, Govindapillai S, Hamilton R, Manlhiot C, Yoo SJ, Farhan M, Sarikouch S, Peters B, McCrindle BW, Grosse-Wortmann L..
Importance of CMR Within the Task Force Criteria for the Diagnosis of ARVC in Children and Adolescents.
J Am Coll Cardiol. 2015 Mar 17;65(10):987-95.

Grothoff M, Spors B, Abdul-Khaliq H, Abd El Rahman M, Alexi-Meskishvili V, Lange P, Felix R, Gutberlet M.
Pulmonary regurgitation is a powerful factor influencing QRS duration in patients after surgical repair of tetralogy of Fallot : A Magnetic Resonance Imaging (MRI) study.
Clin Res Cardiol 2006; 95(12):643-649.

Grothoff M, Spors B, Abdul-Khaliq H, Gutberlet M.
Evaluation of postoperative pulmonary regurgitation after surgical repair of tetralogy of Fallot: comparison between Doppler echocardiography and MR velocity mapping.
Pediatr Radiol. 2008; 38(2):186-91. Epub 2007 Nov 27.

Gutberlet M.
Viewpoint: the way forward in cardiac imaging.
Circulation 2006; 114(5): f117-118.

Gutberlet M, Hoffmann J, Künzel E, A. Fleischer A, Sarikouch S, Beerbaum P, Lehmkuhl L, Andres C, Lurz P, Kostelka M, Abdul-Khaliq H, Dähnert I, Grothoff M.
Prä- und Postoperative Bildgebung bei Patienten mit Transposition der großen Gefäße.
Radiologe. 2011 Jan;51(1):15-22.
externer Link

Klimes K, Abdul-Khaliq H, Ovroutski S, Hui W, Alexi-Meskishvili V, Spors B, Hetzer R, Felix R, Lange PE, Berger F, Gutberlet M.
Pulmonary and caval blood flow patterns in patients with intracardiac and extracardiac Fontan: a magnetic resonance study.
Clinical Research in Cardiology 2007; 96(3): 160-167.

Laser KT, Bunge M, Hauffe P, Argueta JR, Kelter-Klöpping A, Barth P, Sarikouch S, Burchert W, Kececioglu D, Körperich H.
Left ventricular volumetry in healthy children and adolescents: comparison of two different real-time three-dimensional matrix transducers with cardiovascular magnetic resonance.
Eur J Echocardiogr. 2009; 11(2):138-48.

Müller-Mielitz S, Beerbaum P, Gutberlet M, Kühne T, Sarikouch S.
Prozessanalyse der Workflows für eine Bilddatenbank in klinischen Studien
eHealth 2009; 159-164.

Müller-Mielitz S, Kehrel U, Becker K, Ohmann C, Müller-Fürstenberger G, Huggenberger M, Goldschmidt AJW.
Kostenkontrolle der diagnostischen Bildgebung im Kompetenznetz Angeborene Herzfehler
MDI 2010; 4(12):144-147.

Mi Y, Rädle-Hurst T, Rentzsch A, Aicher D, Schäfers HJ, Abdul-Khaliq H.
The Novel Two-Dimensional Strain Reflects Improvement and Remodeling of Left-Ventricular Function Better Than Conventional Echocardiographic Parameters After Aortic Valve Repair in Pediatric Patients.
Pediatr Cardiol. 2013 Jan;34(1):30-8.

Mueller M, Rentzsch A, Hoetzer K, Raedle-Hurst T, Boettler P, Stiller B, Lemmer J, Sarikouch S, Beerbaum P, Peters B, Vogt M, Vogel M, Abdul-Khaliq H.
Assessment of interventricular and right-intraventricular dyssynchrony in patients with surgically repaired tetralogy of Fallot by two-dimensional speckle tracking.
Eur J Echocardiogr. 2010; 11(9):786-792.

Rentzsch A, Böttler P, Vogel M, Abdul-Khaliq H.
Echokardiographie bei angeborenen Herzfehlern.
Die Medizinische Welt 2006; 57(4): 176-179.

Riesenkampff E, Nordmeyer S, Al-Wakeel N, Kropf S, Kutty S, Berger F, Kuehne T..
Flow-sensitive four-dimensional velocity-encoded magnetic resonance imaging reveals abnormal blood flow patterns in the aorta and pulmonary trunk of patients with transposition.
Cardiol Young. 2014 Feb;24(1):47-53.

Riesenkampff EM, Schmitt B, Schnackenburg B, Huebler M, Alexi-Meskishvili V, Hetzer R, Berger F, Kuehne T.
Partial Anomalous Pulmonary Venous Drainage in Young Pediatric Patients: The Role of Magnetic Resonance Imaging.
Pediatr Cardiol. 2009 May;30(4):458-64.

Sarikouch S, Beerbaum P,·Gutberlet M, Barth P,·Rakebrandt F, Müller-Mielitz S, Sax U, Peters B, Kühne T.
Nutzen telemedizinischer Netzwerke für die kardiovaskuläre Forschung: MR-Bildgebung angeborene Herzfehler als Beispiel
Der Kardiologe 2010; Epub.

Sarikouch S, Koerperich H, Boethig D, Peters B, Lotz J, Gutberlet M, Beerbaum P, Kuehne T.
Reference values for atrial size and function in children and young adults by cardiac MR: A study of the german competence network congenital heart defects.
J Magn Reson Imaging. 2011; 33:1028-1039.

Sarikouch S, Koerperich H, Dubowy KO, Boethig D, Boettler P, Mir TS, Peters B, Kuehne T, Beerbaum P.
Impact of Gender and Age on Cardiovascular Function Late After Repair of Tetralogy of Fallot: Percentiles Based on Cardiac Magnetic Resonance.
Circ. Cardiovasc. Imaging. 2011; 4(6):703-711.

Sarikouch S, Kuehne T, Peters B, Gutberlet M, Leismann B, Kelter-Kloepping A, Koerperich H, Beerbaum P.
Sex-specific pediatric percentiles for ventricular size and mass as reference values for cardiac MRI: assessment by steady-state free-precession and phase-contrast MRI flow.
Circ Cardiovasc Imaging. 2010; 3(6):65-76.

Sarikouch S, Schaeffler R, Körperich H, Dongas A, Haas NA, Beerbaum P.
Cardiovascular Magnetic Resonance Imaging for Intensive Care Infants: Safe and Effective?
Pediatr Cardiol 2009; 30(2):146-152.

Telemedizin & IT

Gansland T, Mate S, Helbing K, Sax U, Prokosch HU.
Unlocking Data for Clinical Research – The German i2b2 Experience
Applied Clinical Informatics 2011; 2(1):116-127.

Helbing K, Demiroglu SY, Rakebrandt F, Pommerening K, Rienhoff O, Sax U.
A Data Protection Scheme for Medical Research Networks Review after Five Years of Operation
Methods Inf Med. 2010;49(6):601-7.

Kuchinke W, Häber A, Sax U, Freudigmann M, Semler S.
Elektronische Archivierung in der klinischen Forschung: Ist-Analyse, Bedarfsanalyse und Problemfelder.
DZKF - Deutsche Zeitschrift für Klinische Forschung 7/8: 54-59.

Marschollek M, Demirbilek E.
Providing longitudinal health care information with the new German Health Card-a pilot system to track patient pathways.
Comput Methods Programs Biomed 2006; 81(3):266-271.

Müller-Mielitz S, Dubowy KO.
Vorschlag für ein Exportformat bei der Spiro-Ergometrie und Bodyplethysmographie
GMS Medizinische Informatik, Biometrie und Epidemiologie 2010; 6(1).

Müller-Mielitz S, Ohmann C, Goldschmidt AJW.
Klinische Studien mit EDC und PACS
MDI 2010; 2:52-55.

Müller-Mielitz S, Ohmann C, Goldschmidt AJW.
Kosten-Nutzen-Analyse eines eSource Projekts – Ein Beispiel aus dem Kompetenznetz Angeborene Herzfehler
Tagungsband der eHealth 2010; 264:99-106.

Pommerening K, Sax U, Müller T, Speer R, Ganslandt T, Drepper J, Semmler SC.
Integrating eHealth and Medical Research: The TMF Data Protection Scheme.
in: B. Blobel, P. Pharow, J. Zvarova, D. Lopez [Hrsg.] „eHealth: Combining Health Telematics, Telemedicine, Biomedical Engineering and Bioinformatics to the Edge. CeHR Conference Proceedings, Regensburg 2007“, Berlin 2008, S. 5-10.


Bauer U, Niggemeyer E, Lange PE.
Das Kompetenznetz Angeborene Herzfehler (KN AHF): Vernetzung statt Insellösungen für optimierte Forschung und Versorgung.
Medizinische Klinik 2006; 101(9):753-758.

Lange PE.
Vernetzung hilft, Forschungs- und Versorgungsdefizite zu beseitigen. Editorial.
Die Medizinische Welt 2006; 57(4):122.

Niggemeyer E, Bauer U.
Kompetenznetz Angeborene Herzfehler. Zwölf Jahre vernetzte Forschung für eine besondere Herausforderung
Med Welt 2014 65:292-296

Orwat MI, Kempny A, Bauer U, Gatzoulis MA, Baumgartner H, Diller GP..
The importance of national and international collaboration in adult congenital heart disease: A network analysis of research output.
Int J Cardiol. 2015 Sep 15;195:155-62.

Rienhoff O.
Bedeutung der Kompetenznetze für die Innere Medizin
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Leitlinien und Empfehlungen

Hess J, Bauer U, de Haan F, Flesch J, Gohlke-Bärwolf C, Hagl S, Hofbeck M, Kaemmerer H, Kallfelz HC, Lange PE, Nock H, Schirmer KR, Schmaltz AA, Tebbe U, Weyand M, Breithardt G.
Empfehlungen für Erwachsenen- und Kinderkardiologen zum Erwerb der Zusatz-Qualifikation „Erwachsene mit angeborenen Herzfehlern“ (EMAH).
Clinical Research in Cardiology Supplements 2007; 2(1): 19-26.

Hess J, Bauer U, de Haan F, Flesh J, Gohlke-Baerwolf C, Hagl S, Hofbeck M, Kaemmerer H, Kallfelz HC, Lange PE, Nock H, Schirmer KR, Schmaltz AA, Tebbe U, Weyand M, Breithardt G.
Recommendations for adult and paediatric cardiologists on obtaining additional qualification in “Adults with Congenital Heart Disease” (ACHD)
Int J Cardiol. 2010 Feb 13. 149(2):1 86-91.

Kaemmerer H, Bauer U, de Haan F, Flesch J, Gohlke-Bärwolf C, Hagl S, Hess J, Hofbeck M, Kallfelz HC, Lange PE, Nock H, Schirmer KR, Schmaltz AA, Tebbe U, Weyand M, Breithardt G.
Recommendations for improving the quality of the interdisciplinary medical care of grown-up with congenital heart disease (GUCH).
Int J Cardiol. 2010 Mar 22. 150(1):5 9-64.

Kaemmerer H, Breithardt G; Kommission für Klinische Kardiologie der Deutschen Gesellschaft für Kardiologie.
Recommendations for the quality improvement of interdisciplinary care of adults with congenital heart anomalies.
Clin Res Cardiol. 2006; 95 (4):76-84.

Nonnemacher M, Nassseh D, Stausberg J..
Datenqualität in der medizinischen Forschung. Leitlinie zum adaptiven Management von Datenqualität in Kohortenstudien und Registern.
Medizinisch Wissenschaftliche Verlagsgesellschaft, 2. aktualisierte und erweiterte Auflage
Abstract und Bestellung

Olschewski H, Hoeper MM, Borst MM, Ewert R, Grunig E, Kleber FX, Kopp B, Opitz C, Reichenberger F, Schmeisser A, Schranz D, Schulze-Neick I, Wilkens H, Winkler J, Worth H.
Diagnostik und Therapie der chronischen pulmonalen Hypertonie.
Clin Res Cardiol 2007; 96:301-330.

Scharmer U.
Wie lässt sich die Versorgung Erwachsener mit angeborenem Herzfehler verbessern? Denkanstöße einer Expertenrunde
DMW 2013; 138(04): 151-152

Schmaltz A, Bauer U, Baumgartner H, Cesnjevar R, de Haan F, Franke C, Gabriel H, Gohlke-Bärwolf C, Hagl S., Hess J, Hofbeck M, Kaemmerer H, Kallfelz H. C, Lange P. E, Nock H, Oechslin E, Schirmer K. R, Tebbe U, Trigo Trindade P, Weyand M, Breithardt G.
Medizinische Leitlinie zur Behandlung von Erwachsenen mit angeborenen Herzfehlern (EMAH)
Clin Res Cardiol 2008; 97:194–214.

Schmaltz AA (Ed).
Erwachsene mit angeborenen Herzfehlern (EMAH) – S2-Leitlinie der DGK, DGPK, und DGTHG zur Diagnostik und Therapie in Klinik und Praxis.
Steinkopff-Verlag 2008.
Mehr Informationen

Schmaltz AA, Bauer UMM.
Erwachsene mit angeborenen Herzfehlern - Versorgungssituation und medizinische Probleme.
Herz, September 2013, Volume 38, Issue 6, pp 639-654

Schulze-Bahr E, Klaassen S, Abdul-Khaliq H, Schunkert H..
Gendiagnostik bei kardiovaskulären Erkrankungen – Positionspapier der Deutschen Gesellschaft für Kardiologie (DGK) und der Deutschen Gesellschaft für Pädiatrische Kardiologie (DGPK)
Kardiologe 2015
Article (German only/Deutsch)

Valsangiacomo Buechel ER, Grosse-Wortmann L, Fratz S, Eichhorn J, Sarikouch S, Greil GF, Beerbaum P, Bucciarelli-Ducci C, Bonello B, Sieverding L, Schwitter J, Helbing WA; Document reviewers:; EACVI:, Galderisi M, Miller O, Sicari R, Simpson J, Thaulow E, Edvardsen T; AEPC:, Brockmeier K, Qureshi S, Stein J..
Indications for cardiovascular magnetic resonance in children with congenital and acquired heart disease: an expert consensus paper of the Imaging Working Group of the AEPC and the Cardiovascular Magnetic Resonance Section of the EACVI.
Cardiol Young. 2015 Mar 5:1-20. [Epub ahead of print]

Valsangiacomo Buechel ER, Grosse-Wortmann L, Fratz S, Eichhorn J, Sarikouch S, Greil GF, Beerbaum P, Bucciarelli-Ducci C, Bonello B, Sieverding L, Schwitter J, Helbing WA; Document reviewers:; EACVI:, Galderisi M, Miller O, Sicari R, Simpson J, Thaulow E, Edvardsen T; AEPC:, Brockmeier K, Qureshi S, Stein J..
Indications for cardiovascular magnetic resonance in children with congenital and acquired heart disease: an expert consensus paper of the Imaging Working Group of the AEPC and the Cardiovascular Magnetic Resonance Section of the EACVI.
Eur Heart J Cardiovasc Imaging. 2015 Mar;16(3):281-297. Epub 2015 Feb 17.