Young patient having an ultrasound examination © Wolfram Scheible für Nationales Register

Research Makes
Survival Worth

» OptAHF-Special: Who is Treating Your Heart?

Heart disease is the most frequent congenital malformation. One child in 100 is born with heart disease. We conduct research to support their life and health. The largest research network on congenital heart disease worldwide involves the collaboration of patients, physicians and investigators.

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About our Research Activities

A Strong Voice for Hearts

Jan Delay supports our research with a notable message.

“I support independent research that actually benefits those who rely on it to survive. Solidary and collaborative research that overcomes boundaries, also in one’s own mind.” Hats off to you for making this possible by being a Register member and research promoter. I’m happy to see you keeping at it.”

News From the Competence Network and the Register

Hello, Are You Involved Yet?

It was a great concern of mine to support the creation of the National Register for Congenital Heart Defects with the Friede Springer Herzstiftung. Since then, more and more patients have been contributing to medical progress by signing up with the Register. “I am impressed by the research that has been achieved to this day at the Competence Network for Congenital Heart Defects and by how many of its results have already been able to be incorporated into the effort to improve healthcare.” There are still many unanswered questions. Each registration, each sponsorship, however small the donation might be, help to promote the urgently needed collaborative research in the field of congenital heart disease. Thus, we are promoting life and the quality of life.

Yours sincerely, Friede Springer

Heart-Explorer Magazine

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