Young patient having an ultrasound examination

Research Makes
Survival Worth
Living.

» Updated corona information and other news

Heart disease is the most frequent congenital malformation. One child in 100 is born with heart disease. We conduct research to support their life and health. The largest research network on congenital heart disease worldwide involves the collaboration of patients, physicians and investigators.

Funded by:

BMBF

Deutsches Zentrum für Herz-Kreislauf-Forschung e. V.

Marc coming from his annual routine follow-up examination, Wolfram Scheible für Nationales Register — Marc coming from his annual routine follow-up examination

Marc, assistant tax consultant, 27 years

“When I was a child, I didn’t like the fact that I wasn’t allowed to do many things. I find life as an adult with congenital heart disease much easier.”

Read Marc’s story

ACHD researcher Prof. Dr. Dr. med. Gerhard-Paul Diller, Nationales Register | UKM — ACHD researcher Prof. Dr. Dr. med. Gerhard-Paul Diller

Prof. Dr. Dr. med. Gerhard-Paul Diller, ACHD Researcher

“Over 50,000 register members donate their data and samples. This is a big act of faith, which places a great responsibility on us.”

Go to "Meet the Researcher"

Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist, Wolfram Scheible für Nationales Register — Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist

Prof. Dr. med. Tanja Rädle-Hurst, ACHD cardiologist

“We do our utmost to make sure that our patients reach old age; and that they do so well.”

Interview with the ACHD professor

Current Issues

About our Research Activities

Jugendliche zusammen auf einer Wiese in der Abendsonne.

Research Results | Medicine and Healthcare

Verlauf und Risiken nach OP bei komplexer TGA

Noch vor 40 Jahren bedeutete eine TGA ein sicheres Todesurteil. Heute lässt sich auch eine komplexe TGA immer besser operieren. Eine erste multizentrische Studie mit dem Nationalen Register zeigt, was die Diagnose nach der Korrektur langfristig bedeutet.

Zum Forschungsergebnis

Research Results | Exercise Capacity and Sports

Herzkinder sitzen zu viel

Sport bei angeborenen Herzfehlern? Das ist sogar lebenswichtig. Die S-BAHn Studie des Kompetenznetzes Angeborene Herzfehler zeigt: Herzkinder sitzen zu viel.

Zum Forschungsergebnis

Artificial intelligence aids risk assessment in congenital heart disease.

Research Results | Medicine and Healthcare

Measuring the Heart

Methods of artificial intelligence enable a risk assessment for a life with corrected tetralogy of Fallot (ToF), as a recent study at the Competence Network revealed. Their application could simplify and improve the medical follow-up.

To the research results

A Strong Voice for Hearts

Jan Delay supports our research with a notable message.

“I support independent research that actually benefits those who rely on it to survive. Solidary and collaborative research that overcomes boundaries, also in one’s own mind.” Hats off to you for making this possible by being a Register member and research promoter. I’m happy to see you keeping at it.”

View video message

News From the Competence Network and the Register

KNAHF-Initiator Prof. Dr. med. Peter E. Lange bei einer Tagung im März 2007.

Meldungen | Inside News

Abschied von einem Visionär

Der Gründer des Kompetenznetz Angeborene Herzfehler Prof. Dr. med. Peter E. Lange ist tot. Der renommierte Kinderkardiologe und Spezialist für Rechtsherzerkrankungen hat Maßstäbe in der Forschung gesetzt.

Mehr

Is it just a harmless cold or a serious infection?

Meldungen | Important Patient Information

Coronavirus: How Can I Protect Myself as a Heart Patient?

Be cautious, but don’t panic. This is heart experts’ recommendation regarding the novel coronavirus. Read here for what matters for patients with congenital heart disease and their families now, according to current knowledge.

Read patient information

Young patients discussing at a family event of the National Register in Bad Oechsen.

The Competence Network

Researching for Sustainable Innovations

If you want to keep your ability to compete internationally in the field of medicine you will need more than isolated efforts. Cutting-edge research can only be achieved in networks.

Learn more

Dr. h.c. Friede Springer, founding patron of the National Register,

Hello, Are You Involved Yet?

It was a great concern of mine to support the creation of the National Register for Congenital Heart Defects with the Friede Springer Herzstiftung. Since then, more and more patients have been contributing to medical progress by signing up with the Register. “I am impressed by the research that has been achieved to this day at the Competence Network for Congenital Heart Defects and by how many of its results have already been able to be incorporated into the effort to improve healthcare.” There are still many unanswered questions. Each registration, each sponsorship, however small the donation might be, help to promote the urgently needed collaborative research in the field of congenital heart disease. Thus, we are promoting life and the quality of life.

Yours sincerely, Friede Springer

Become a part of our research and funding!

Heart-Explorer Magazine

PD Dr. med. Fabian Kari ist Kinderherzchirurg am Universitäts-Herzzentrum Freiburg-Bad Krozingen.

Herzerforscher - Extra | Interview

Herausforderung komplexe TGA

Was ist eine komplexe TGA? Wie wird sie korrigiert? Und was bedeuten die unterschiedlichen OP-Verfahren langfristig für die Patienten? Darüber haben wir mit dem Kinderherzchirurgen Fabian Kari gesprochen.

Zum Herzerforscher-Extra

Keeping distance, wearing a mask, observing sanitary regulations: The coronavirus pandemic has changed our everyday life for an indefinite period of time.

Heart-Explorer Magazine | Gespräch

Coronavirus Pandemic: At-Risk Patients are Concerned

Since the beginning of the coronavirus crisis, we have been living in a state of emergency. What does that mean for adults with congenital heart disease? We talked about this with heart patient Eva Niggemeyer and ACHD specialist Gerhard-Paul Diller.

To the interview

Karla Völlm, Ehrenkonsulin der Westfälischen Wilhelms-Universität, unterstützt mit ihrer „EMAH Stiftung Karla Völlm“ die medizinische Forschung und Versorgung für Erwachsene mit angeborenen Herzfehlern.

Heart-Explorer - Extra | Interview

Die Mäzenin der Herzmedizin

Ohne den Einsatz der „EMAH Stiftung Karla Völlm“ wäre in der Versorgung und Erforschung angeborener Herzfehler vieles nicht möglich. Doch es ist ein Lebenswerk, das immer wieder unter Druck gerät.

Zum Herzerforscher-Extra

Patients are Concerned

Coronavirus

Become a Member

You Won’t Ever Forget This!

Become a Member

Join Our Research

Forschungsdauer: Viele Leben lang!

Spenden für den medizinischen Fortschritt.

Patients are Concerned

Why We Do Research

Research Makes Survival Worth Living.

Current Issues

Coronavirus: How Can I Protect Myself as a Heart Patient?

Abschied von einem Visionär

Herzkinder sitzen zu viel

Widespread Participation in the Corona Survey

Wir trauern um Ingram Schulze-Neick

Schwere Herzfehlbildungen früh erkennen

DGPK Posterpreis für S-BAHn-Studie

Angeborene Herzfehler - ein unterschätztes Forschungsgebiet?

Paper of the Month

Wir sind soweit!

Startschuss für den 6. Watt-Moor-Ultra

Herzkinder sind gut in der Schule

Gender-Gap in der AHF-Forschung

Danke Micha!

Adee Moni!

KNAHF startet KI-Forschung

Über das Kompetenznetz Angeborene Herzfehler

Rettung schwerstkranker Kinder bedroht

Herzschrittmacher: Zu teuer für ein Kind?

Neue Studie: Optimal versorgt bei AHF?

Neue Technologie erspart Kindern Herz-OP

DGPK-Forschungsförderpreis 2018

Chronisch krank und gut beraten?

Die Transition ist die große Hürde

Wissen Sie genug über Ihr Endokarditis-Risiko?

Endlich Pflicht: Pulsoxymetrie-Screening

About our Research Activities

Verlauf und Risiken nach OP bei komplexer TGA

Herzkinder sitzen zu viel

Measuring the Heart

A Strong Voice for Hearts

News From the Competence Network and the Register

Abschied von einem Visionär

Coronavirus: How Can I Protect Myself as a Heart Patient?

Researching for Sustainable Innovations

Hello, Are You Involved Yet?

Heart-Explorer Magazine

Herausforderung komplexe TGA

Coronavirus Pandemic: At-Risk Patients are Concerned

Die Mäzenin der Herzmedizin

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Research Makes
Survival Worth
Living.