The Competence Network
The Steering Committee
Anselm Uebing, born in 1969, is Director of the Clinic for Congenital Heart Defects and Pediatric Cardiology at the University Medical Center Schleswig-Holstein, Campus Kiel. More
Anselm Uebing studied medicine at Heinrich Heine University in Düsseldorf. Thereafter he completed his training as a pediatrician and pediatric cardiologist at University Hospital in Kiel. From 2004 to 2006 Anselm Uebing received clinical and scientific training in the treatment of adults with a congenital heart at the Royal Brompton Hospital in London and specialized as a "London -Toronto Fellow” in Adult Congenital Heart Disease. From 2006 to 2010, he worked as a senior physician at the Clinic for Congenital Heart Defects and Pediatric Cardiology in Kiel, Germany. In 2010, he moved to the Royal Brompton Hospital London, where he became head of the cardiac catheterization laboratory in the adult congenital heart defect unit. In 2017 he became head of the Department of Pediatric and Adolescent Medicine - Pediatric Cardiology at Münster University Hospital. Since April 2019, Anselm Uebing has been Director of the Clinic for Congenital Heart Defects and Pediatric Cardiology at Christian Albrechts University of Kiel (CAU). Anselm Uebing is also a DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung, German Centre for cardiovascular research) scientist at the Hamburg/Kiel/Lübeck site.
Representative of the German Cardiac Society (DGK)
Helmut Baumgartner is Director of the Klinik für Kardiologie III: Center for Congenital and Acquired Heart Defects (EMAH) at the University Hospital Münster. More
Helmut Baumgartner studied at the medical faculty of the University of Vienna. After spending time as a visiting researcher at institutes such at the Cedars-Sinai Medical Center, University of California, Los Angeles (USA), he directed the Echocardiography Lab, as well as additional different research programs, at the University of Vienna. He was also a member of the Ethical Review Board of the medical faculty at the University of Vienna until 2007, when he accepted a call to the University of Münster. He was granted with numerous awards for his research activities in the field of heart valve disease in adults with congenital heart disease, which include clinical and experimental research on echocardiography and catheter interventions in congenital and acquired heart valve defects, as well as on myocardial vitality. For many years, Helmut Baumgartner was the president of the Austrian Society of Cardiology. For the German Cardiac Society, he acted as a member of the guideline committee for the treatment of heart valve disease and congenital heart disease in adults. He is a member of the European Society of Cardiology (ESC) and an associated editor of the European Heart Journal. Helmut Baumgartner is both a member and deputy chair of the Competence Network for Congenital Heart Defects Management Board. He also acts as a member of the research network’s Steering Committee.
Hashim Abdul-Khaliq is the Director of the Klinik für Kinderkardiologie at the Saarland University Hospital. More
After graduating and earning his doctorate at the Hannover Medical School, Hashim Abdul-Khaliq was initially based at the department of neonatology of the pediatric clinic at Auguste-Viktoria-Klinikum Berlin for three years. After that, he worked with the Department of Congenital Heart Disease – Pediatric Cardiology at Deutsches Herzzentrum Berlin for twelve years. For the past six years, he has been a senior physician there. After qualifying as a professor at the Humboldt-Universität (Berlin), he accepted a call to the Klinik für Kinderkardiologie at the Saarland University Hospital. Hashim Abdul-Khaliq is a member of the German Society of Paediatric Cardiology (DGPK), the German Cardiac Society (DGK) and the Association for European Paediatric and Congenital Cardiology (AEPC). The pediatric cardiologist additionally advises the patient associations as a member of the medical-scientific board of Marfan Hilfe (Deutschland) e. V., as well as of the advisory board of the Bundesverband Herzkranke Kinder e. V. Hashim Abdul-Khaliq is a member and the Chair of the Competence Network for Congenital Heart Defects Executive Board. He also acts as a member of the research network’s Steering Committee.
Boulos Asfour, born in 1960, is Director of the Department of Paediatric Cardiac Surgery at the German Paediatric Heart Centre in Bonn. More
Boulos Asfour began his medical career after studying medicine in Giessen in the Department of Thoracic, Cardiac and Vascular Surgery at the Westphalian Wilhelms University of Münster (WWU). In 1993 he trained as a visiting doctor at the Children's Hospital Boston (Harvard Medical School) in pediatric cardiac surgery. After receiving his doctorate in 1995, a research fellowship took him to the Johns Hopkins University in Baltimore, Maryland. In 1998, Boulos Asfour became a senior physician at the EMU. In 2002, the habilitated pediatric cardiac surgeon moved to the German Pediatric Heart Center (DKHZ) in
St. Augustine. From 2006 to 2019 he was head physician of the Pediatric Cardio Surgery Department and Medical Director of the German Pediatric Heart Center (DKHZ) at the Asklepios Pediatric Clinic St. Augustin. In October 2019, he became director of the Department of Paediatric Cardiac Surgery at the redesigned German Paediatric Heart Centre in Bonn, University Hospital Bonn. Boulos Asfour teaches at the University of Münster as well as at the University of Duisburg Essen and at the Semmelweis University in Budapest. He is a member of the German Society for Thoracic and Cardiovascular Surgery (DGTHG) as well as of the Competence Network for Congenital Heart Defects. He belongs to the board of the National Register for Congenital Heart Defects and the research network’s Steering Committee.
Felix Berger is Director of the Clinic for Congenital Heart Defects and Pediatric Cardiology at the German Heart Institute Berlin (DHZB) and Director of the Department of Paediatry, Divison of Cardiology, at the Otto Heubner Center for Pediatric and Adolescent Medicine at the Charité - Universitätsmedizin Berlin, Campus Virchow Klinikum. More
Felix Berger studied medicine at the Christian-Albrechts University in Kiel (CAU). After his further training in pediatric cardiology at the University Children's Hospital in Kiel, he was one of the co-founders of the Department of Congenital Heart Defects and Pediatric Cardiology at the German Heart Institute Berlin (DHZB) in 1988. In 1991 he received his doctorate magna cum laude under the supervision of Prof. Dr. Peter E. Lange, the initiator of the National Register for Congenital Heart Defects. After his habilitation in 2003 at the University of Zurich, he was appointed university professor for pediatric cardiology at the Charité - Universitätsmedizin Berlin in 2004. His research focuses on invasive diagnostics and interventional therapy of congenital heart defects. Felix Berger is a member of the German Society of Pediatric Cardiology (DGPK), the German Society of Cardiology - Cardiovascular Research (DGK), the Swiss Society of Pediatrics (SGP), the Swiss Society of Cardiology (SGK), the European Society of Cardiology (ESC), the Association of European Pediatric Cardiologists (AEPC) and the Russian Scientific Society of Interventional Radiology and Endovascular Surgery. He is also a member of the Scientific Advisory Board of the Fördergemeinschaft Deutsche Kinderherzzentren e. V. Felix Berger is a member of the Competence Network for Congenital Heart Defects and is on the research network’s Steering Committee.
Vertreter Deutsche Gesellschaft für Thorax-, Herz- und Gefäßchirurgie (DGTHG)
Robert Cesnjevar, Jahrgang 1965, leitet als Chefarzt die Herzchirurgie am Kinder-Herzzentrum des Universitäts-Kinderspitals Zürich. Er ist außerordentlicher Professor für Kinder-Herzchirurgie an der Universität Zürich. More
Robert Cesnjevar studierte an der Universität Erlangen Humanmedizin und startete seine chirurgische Laufbahn in der Herzchirurgischen Abteilung der Universitätsklinik Erlangen. Seiner Promotion folgten Weiterbildungen in der Herz-Thorax-Chirurgie in London bei dem Kinderkardiochirurgen Marc de Leval zunächst an der Harley Street Clinic und dann am Hospital for Sick Children. Der habilitierte Facharzt für Herzchirurgie und DGHTG zertifizierte Kinderherzchirurg leitete von 2005 bis 2008 die Klinik für Kinderherzchirurgie des Universitären Herz- und Gefäßzentrums Hamburg am Universitätsklinikum Hamburg Eppendorf (UKE). 2008 wechselte er an die Kinderherzchirurgische Abteilung der Universitätsklinik Erlangen, die er bis 2021 leitete. Seit Juli 2021 ist er Extraordinarius für Kinderherzchirurgie der Universität Zürich und Chefarzt der Herzchirurgie am Kinderspital Zürich. Zu den Schwerpunkten seiner Forschung zählen neben Outcomeanalysen komplexer Herzfehlbildungen sowie Qualitätssicherung kinderherzchirurgischer Eingriffe unter anderem die Organersatztherapie im Kindesalter und die Dynamisierung der Einkammerzirkulation (Fontan-RVAD). Für seine langjährige patientenorientierte Forschung wurde er mehrfach ausgezeichnet. So erhielt er 2013 als erster Kinderherzchirurg den Förderpreis der Fritz-Acker-Stiftung der Deutschen Gesellschaft für Kardiologie (DGK). Robert Cesnjevar ist Mitglied des Kompetenznetzes Angeborene Herzfehler und seit Juli 2022 im Lenkungsausschuss des Forschungsverbundes.
Vertreter Deutsche Gesellschaft für Pädiatrische Kardiologie (DGPK)
Marc-Phillip Hitz, born in 1975, is Professor of Medical Genetics at Faculty VI of Medicine and Health Sciences at the University of Oldenburg. He also is director of the University Institute of Medical Genetics at Oldenburg Hospital. More
Marc-Phillip Hitz studied human medicine in Göttingen. After receiving his doctorate in 2004, he worked as a pediatric resident at the Hannover Medical School. After research stays combined with clinical work at Sainte Justine Hospital, Montreal, Canada and in the UK at the Wellcome Trust Sanger Institute, he obtained his PhD in addition to his doctorate at the University of Cambridge. In 2014, he moved to the Department of Congenital Heart Defects and Pediatric Cardiology at the University Hospital Schleswig-Holstein (UKSH), Kiel Campus, as a pediatric specialist. There he led a research group on the genetics of congenital heart defects and completed his residency in human genetics in 2017. In 2019, Marc-Phillip Hitz accepted the call to the endowed professorship of the German Center for Cardiovascular Research (DZHK) for the genetics of structural heart disease in Kiel. In 2021, the University of Oldenburg appointed him to the professorship of Medical Genetics at Faculty VI Medicine and Health Sciences. Since 2021, the physician has also been director of the University Institute for Medical Genetics at Oldenburg Hospital. Marc-Phillip Hitz has received several awards for his research. For example, the German Society for Pediatric Cardiology (DGPK) honored him with the 2017 Science Award for the discovery of three new genes involved in the development of cardiac malformations. Marc-Phillip Hitz is a member of the Competence Network for Congenital Heart Defects.
Representative of the Bundesverband Niedergelassener Kardiologen
(the federal association of cardiologists in private practice) (BNK)
The cardiologist Irmtraut Kruck is specialized in gender medicine and adults with congenital heart defects and was a member of the "EMAH Task Force" of the German associations of cardiology. Until 2017 she worked as a certified specialist for adults with congenital heart defects in the cardiological group practice Cardio Centrum Ludwigsburg/Bietigheim.– More
Irmtraut Kruck studied medicine at the Ruprecht-Karls-University Heidelberg, the Université Montpellier and the Free University Berlin. After completing her doctorate at the Free University of Berlin, she completed her specialist training at the Steglitz Clinic of the Free University of Berlin, now the Charité Campus Benjamin Franklin (CBF). Until 1989, the cardiologist worked there as an assistant professor with a research focus on echocardiography and worked in the Department of Cardiology/Pulmonology before joining the Cardio Centrum Ludwigsburg/Bietigheim as a resident physician. Irmtraut Kruck is a member of the board of the National Register for Congenital Heart Defects and the Steering Committee of the Competence Network for Congenital Heart Defects.
Representative of the Arbeitsgemeinschaft Niedergelassener Kinderkardiologen
(association of pediatric cardiologists in private practice) (ANKK)
Siegrun Mebus, is a physician in private practice in Eichwalde, Brandenburg. She is a specialist in paediatric and adolescent medicine and a paediatric cardiologist, and is specialized in adults with congenital heart defects.
Vertreterin Nationales Register für angeborene Herzfehler e. V.
Katharina Schmitt is a senior physician at the Department of Congenital Heart Disease – Pediatric Cardiology at Deutsches Herzzentrum Berlin. More
After graduating in human medicine, Katharina Schmitt did her doctorate at the Friedrich-Schiller University of Jena and at the Humboldt-Universität zu Berlin. Her doctorate focused on the “Retrospective analysis of the diagnostic quality of magnetic resonance mammography with special regard to economic aspects” and was supervised by Prof. Dr. med. Werner A. Kaiser at the Friedrich-Schiller University of Jena. Katharina Schmitt, who is a specialist in pediatric and adolescent medicine, as well as in pediatric cardiology, qualified as a professor with a research paper on “Hypothermia for organ protection” in 2011. Since 2012, she has been a senior research fellow and associate professor at the Department of Congenital Heart Disease – Pediatric Cardiology at Deutsches Herzzentrum Berlin. There, she has been the head of the study group on experimental pediatric cardiology since 2005. Her research focus includes, but is not restricted to, neuroprotection in pediatric cardiology, basic research with respect to neuroprotection, as well as psychomotor assessments in children with congenital heart disease.
Matthias Sigler ist leitender Oberarzt der Klinik für Pädiatrische Kardiologie, Intensivmedizin und Neonatologie der Universitätsmedizin Göttingen an der Georg-August-Universität. More
Matthias Sigler hat an der Julius-Maximilians-Universität in Würzburg, der Leopold-Franzens-Universität Innsbruck und an der Philipps-Universität Marburg Humanmedizin sowie parallel dazu Geschichte und Kunstgeschichte studiert. Der Facharzt für Kinderheilkunde und Jugendmedizin mit Zusatzqualifikationen Pädiatrische Kardiologie, Neonatologie, Pädiatrische Intensivmedizin und EMAH-Kardiologie absolvierte seine Ausbildung zum Kinderarzt ab 1996 an der Uniklinik der RWTH Aachen, seine Weiterbildung zum Kinderkardiologen ab 2001 am Herzzentrum der Universitätsmedizin Göttingen. Einen Schwerpunkt seiner Forschung bildet die Neu- und Weiterentwicklung interventioneller Therapieverfahren bei angeborenen Herzfehlern. Zur Untersuchung der Biokompatiblität von kardiovaskulären Implantaten hat Matthias Sigler am Herzzentrum der Universitätsmedizin Göttingen ein internationales Forschungslabor aufgebaut und etabliert. Für seine Forschung auf dem Gebiet der Herzklappen-Implantate wurde er 2016 mit dem Wissenschaftspreis der Deutschen Gesellschaft für Pädiatrische Kardiologie (DGPK) ausgezeichnet. Ein weiterer Schwerpunkt in Forschung und Lehre ist die Morphologie angeborener Herzfehler. Matthias Sigler gehört dem Vorstand der Working Group on Cardiovascular Morphology der Association of European Pediatric Cardiologists (AEPC) an. Klinische Schwerpunkte seiner Tätigkeit bilden diagnostische und interventionelle Herzkatheterverfahren, die Betreuung von Patienten mit komplexen und insbesondere zyanotischen Herzfehlern, auch mit pulmonalarterieller Hypertonie, sowie die Neonatologie und Intensivmedizin. Matthias Sigler ist Mitglied des Kompetenznetzes Angeborene Herzfehler und seit Juli 2022 im Lenkungsausschuss des Forschungsverbundes.
Oktay Tutarel was born in 1976 and is the head of the section “Adults with Congenital Heart Defects”, as well as a senior physician at the Department of Paediatric Cardiology and Congenital Heart Defects at the German Heart Centre Munich, the clinic associated with the Technical University of Munich. More
Oktay Tutarel graduated in human medicine at the Hannover Medical School (MHH). It was also there that he did his residency in internal medicine and cardiology. After a fellowship at the Adult Congenital Heart Centre and National Centre for Pulmonary Hypertension at the Royal Brompton Hospital in London (Great Britain), he qualified as a professor with research conducted on the subject of “biomarkers in adults with congenital heart disease” in 2014. In 2016, the certified ACHD specialist transferred to the German Heart Center Munich.
He is an elected member of the nucleus of the Work Group on “Congenital Heart Disease in Adulthood” (AG „Kongenitale Herzfehler im Erwachsenenalter“) of the German Cardiac Society (DGK) and a member of the nucleus of the “ESC Working Group on Grown Up Congenital Heart Disease” of the European Society of Cardiology (ESC). As a representative of the DGK, he has been involved in the ACHD Task Force since 2018. He is a member of the Competence Network for Congenital Heart Defects and also acts as a member of the research network’s Steering Committee.