The National Register
Management Board
The Management Board of the National Register for Congenital Heart Defects includes representatives of the cardiac societies. It decides about the Register’s proceedings in terms of content.
Members of the NRAHF Management Board
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Prof. Dr. med. Stephan Nicolas Schubert
Deputy Chairperson of the Management Board
German Society of Paediatric Cardiology and Congenital Heart Defects (DGPK)Stephan Schubert, born in 1974, is Director of the Clinic for Pediatric Cardiology and Congenital Heart Defects at the Pediatric Heart Center and Center for Congenital Heart Defects of the Heart and Diabetes Center North Rhine-Westphalia in Bad Oeynhausen, University Hospital of the Ruhr University Bochum. More
Stephan Schubert studied human medicine at the Martin-Luther-University Halle and at the Free University Berlin. In 2002 he began his medical career at the German Heart Centre Berlin (DHZB). In 2003 Stephan Schubert received his doctorate at the Charité, Humboldt University Berlin. His topic: "Evaluation of the neuroprotective effect of methylprednisolone in cardiopulmonary bypass and circulatory arrest in deep hypothermia". In 2012 he habilitated with the topic "Clinical aspects in pediatric heart transplantation". Since 2012 he has been head of the cardiac catheterization laboratory as senior physician in the Clinic for Congenital Heart Defects - Pediatric Cardiology at the German Heart Institute Berlin (DHZB). In 2019 Stephan Schubert was appointed to a professorship for "Interventional Cardiology in Congenital Heart Defects" at Charité - Universitätsmedizin Berlin in cooperation with the DHZB. Stephan Schubert is a specialist in pediatric and adolescent medicine, pediatric cardiology, and adult and pediatric intensive care medicine. The internationally renowned expert in interventional therapy for congenital heart defects and pediatric heart transplantation has been Director of the Clinic for Pediatric Cardiology and Congenital Heart Defects at the Pediatric Heart Center and the Center for Congenital Heart Defects at the Heart and Diabetes Center North Rhine-Westphalia in Bad Oeynhausen since 2020,
University Hospital of the Ruhr-University Bochum. He has directed numerous clinical studies and is, among other things, founder of the multicenter registry for patients with myocarditis MYKKE, which was established in cooperation with the Competence Network for Congenital Heart Defects. Stephan Schubert is a member of the German Society for Pediatrics (DGKJ), the German Society for Pediatric Cardiology (DGPK), the International Society for Heart and Lung Transplantation (ISHLT) and the Association for European Paediatric and Congenital Cardiology (AEPC). -
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Prof. Dr. med. Boulos Asfour
German Society for Thoracic and Cardiovascular Surgery (DGTHG)
Boulos Asfour, born in 1960, is Director of the Department of Paediatric Cardiac Surgery at the German Paediatric Heart Centre in Bonn. More
Boulos Asfour began his medical career after studying medicine in Giessen in the Department of Thoracic, Cardiac and Vascular Surgery at the Westphalian Wilhelms University of Münster (WWU). In 1993 he trained as a visiting doctor at the Children's Hospital Boston (Harvard Medical School) in pediatric cardiac surgery. After receiving his doctorate in 1995, a research fellowship took him to the Johns Hopkins University in Baltimore, Maryland. In 1998, Boulos Asfour became a senior physician at the EMU. In 2002, the habilitated pediatric cardiac surgeon moved to the German Pediatric Heart Center (DKHZ) in
St. Augustine. From 2006 to 2019 he was head physician of the Pediatric Cardio Surgery Department and Medical Director of the German Pediatric Heart Center (DKHZ) at the Asklepios Pediatric Clinic St. Augustin. In October 2019, he became director of the Department of Paediatric Cardiac Surgery at the redesigned German Paediatric Heart Centre in Bonn, University Hospital Bonn. Boulos Asfour teaches at the University of Münster as well as at the University of Duisburg Essen and at the Semmelweis University in Budapest. He is a member of the German Society for Thoracic and Cardiovascular Surgery (DGTHG) as well as of the Competence Network for Congenital Heart Defects. He belongs to the board of the National Register for Congenital Heart Defects and the research network’s Steering Committee. -
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Prof. Dr. med. Nikolaus A. Haas
German Society of Paediatric Cardiology and Congenital Heart Defects (DGPK)
Nikolaus Haas, born in 1964, is Director of the Department of Pediatric Cardiology and Pediatric Intensive Care Medicine at the University of Munich Hospital, Grosshadern Campus. More
Nikolaus Haas studied human medicine at the Ruprecht Karls University in Heidelberg and Mannheim, as well as at the University of California in Los Angeles (UCLA). He then began his training as a pediatrician at the University Children's Hospital in Mannheim. A specialist in pediatrics and adolescent medicine with additional qualifications in pediatric cardiology, neonatology, pediatric intensive care medicine and ACHD cardiology, he worked as a functional senior physician at the German Heart Center Berlin from 1997 to 1999 before his professional career took him first to the Royal Children’s Hospital in Melbourne and later to the Prince Charles Hospital in Brisbane as director of the pediatric intensive care unit and to the University of Queensland in Australia as associate professor. From 2006 to 2015, he headed the Cardiac Catheterization Laboratory, Interventional Cardiology and Pediatric Intensive Care Medicine at the Center for Congenital Heart Defects and Children's Heart Center of the Heart and Diabetes Center North Rhine-Westphalia in Bad Oeynhausen as senior physician. Since 2015, he has been Director of the Clinic for Pediatric Cardiology and Pediatric Intensive Care Medicine at the Ludwig-Maximilians-University Hospital in Munich (LMU), Campus Großhadern. He is also involved in continuing medical education in Ethiopia, Mozambique, Namibia, Nigeria and in Indonesia to create standards of care for children and adults with congenital heart defects. Nikolaus Haas is a member of the Association for European Paediatric and Congenital Cardiology (AEPC) and the German Society for Pediatric Cardiology and Congenital Heart Defects (DGPK), among others. Since 2022, he has served on the board of the National Registry for Congenital Heart Defects.
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Dr. med. Irmtraut Kruck
German Cardiac Society (DGK) / Bundesverband Niedergelassener Kardiologen e. V. (federal association of cardiologists in private practice) (BNK)
The cardiologist Irmtraut Kruck is specialized in gender medicine and adults with congenital heart defects and was a member of the "EMAH Task Force" of the German associations of cardiology. Until 2017 she worked as a certified specialist for adults with congenital heart defects in the cardiological group practice Cardio Centrum Ludwigsburg/Bietigheim.– More
Irmtraut Kruck studied medicine at the Ruprecht-Karls-University Heidelberg, the Université Montpellier and the Free University Berlin. After completing her doctorate at the Free University of Berlin, she completed her specialist training at the Steglitz Clinic of the Free University of Berlin, now the Charité Campus Benjamin Franklin (CBF). Until 1989, the cardiologist worked there as an assistant professor with a research focus on echocardiography and worked in the Department of Cardiology/Pulmonology before joining the Cardio Centrum Ludwigsburg/Bietigheim as a resident physician. Irmtraut Kruck is a member of the board of the National Register for Congenital Heart Defects and the Steering Committee of the Competence Network for Congenital Heart Defects.
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Prof. Dr. med. Anselm Uebing
German Society of Paediatric Cardiology and Congenital Heart Defects (DGPK)
Anselm Uebing, born in 1969, is Director of the Clinic for Congenital Heart Defects and Pediatric Cardiology at the University Medical Center Schleswig-Holstein, Campus Kiel. More
Anselm Uebing studied medicine at Heinrich Heine University in Düsseldorf. Thereafter he completed his training as a pediatrician and pediatric cardiologist at University Hospital in Kiel. From 2004 to 2006 Anselm Uebing received clinical and scientific training in the treatment of adults with a congenital heart at the Royal Brompton Hospital in London and specialized as a "London -Toronto Fellow” in Adult Congenital Heart Disease. From 2006 to 2010, he worked as a senior physician at the Clinic for Congenital Heart Defects and Pediatric Cardiology in Kiel, Germany. In 2010, he moved to the Royal Brompton Hospital London, where he became head of the cardiac catheterization laboratory in the adult congenital heart defect unit. In 2017 he became head of the Department of Pediatric and Adolescent Medicine - Pediatric Cardiology at Münster University Hospital. Since April 2019, Anselm Uebing has been Director of the Clinic for Congenital Heart Defects and Pediatric Cardiology at Christian Albrechts University of Kiel (CAU). Anselm Uebing is also a DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung, German Centre for cardiovascular research) scientist at the Hamburg/Kiel/Lübeck site.
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PD Dr. med. Claudia Walther
German Cardiac Society (DGK)
Claudia Walther, born in 1966, is senior physician in the Department of Cardiology, Clinic III Cardiology, Angiology, Nephrology at the University Hospital Frankfurt. More
Claudia Walther studied human medicine at the Ludwig-Maximilians-University Munich. The cardiologist and certified ACHD expert began her medical career in 1995 as an assistant doctor at the Heart Center of the University of Leipzig under Prof. Dr. med. Gerhard Schuler. Here she established, among other things, the cardiac sports group of the Leipzig Heart Center. In 1997, Claudia Walther received her doctorate at the University of Leipzig on the topic "Evaluation of a new scaffold-free biological mitral valve prosthesis - the quadricusp mitral valve (QMV)". Since 2005, she has headed the scientific prevention project "Leipzig School Project" in cooperation with the Institute of Sports Medicine at the University of Leipzig under Prof. Dr. med. Martin Busse. In 2015, she habilitated at the University of Leipzig with her research work entitled "Influence of daily physical education on cardiovascular parameters in school children. A pilot project for the primary prevention of cardiovascular diseases". Claudia Walther first became a senior physician at the Heart Center of the University of Leipzig in 2009 before moving to the Department of Cardiology at the Kerckhoff Clinic in Bad Nauheim under the direction of Prof. Dr. med. Christian Wilhelm Hamm in 2010. From 2011 to 2018 she was responsible for the "Mitral Valve Program", the organization of the valve consultation hours and the catheter-interventional treatment of mitral valve patients. Since 2018, she has been responsible for these areas as senior consultant in the Department of Cardiology of Clinic III of the University of Frankfurt under Prof. Dr. med. Andreas Zeiher. The cardiologist specializing in interventional cardiology conducts research in the areas of heart failure, acute myocardial infarction, interventional cardiology and functional coronary diagnostics. She is a member of the German Society of Cardiology - Cardiovascular Research (DGK) and the European Society of Cardiology (ESC).
Management
The association National Register for Congenital Heart Defects has appointed Dr. med. Ulrike Bauer as Managing Director The association’s members consist of supporting members and full members. For ensuring the persons in charge to have the necessary expertise, full membership can only be granted to legal persons who are involved in the fields of cardiology, pediatric cardiology or cardiothoracic/vascular surgery by either giving inpatient treatment or being an active scientist.
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Dr. med. Ulrike Bauer
Scientific Managing Director of the National Register for Congenital Heart Defects
Ulrike Bauer, born in 1958, is the Scientific Managing Director of the National Register for Congenital Heart Defects and the Competence Network for Congenital Heart Defects. More
Ulrike Bauer studied human medicine at the Humboldt University of Berlin. After finishing her doctorate on echocardiography in congenital heart disease, she was a resident for internal medicine at the county hospital in Chemnitz, after which she transferred to the Institute for Cardiovascular Diagnostics at the Charité Berlin. From there she transferred to the department of pediatric cardiology at the German Heart Center, Berlin (Deutsches Herzzentrum Berlin). Under the guidance of Prof. Dr. Peter E. Lange, Ulrike Bauer started setting up a nationwide register for congenital heart disease. The initiative by Prof. Dr. Peter E. Lange lead to the founding of the association of the National Register for Congenital Heart Defects. It was jointly supported by the board of trustees of Deutsches Herzzentrum Berlin and the cardiac societies, as well as by parent and patient associations. The same year was also the kick-off for creating the Competence Network for Congenital Heart Defects, which could took place thanks to government grants. Ulrike Bauer is a member of the German Society of Paediatric Cardiology (DGK), the European Society of Cardiology (ESC), the German Cardiac Society (DGK) and the Association for European Paediatric and Congenital Cardiology (AEPC).