DNA samples from the register are stored and processed at the ZeBanC., Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

About Us

Who Reviews Your Research Proposal?

The Review Board of the Research Network

Research conducted at the Competence Network for Congenital Heart Defects puts the patient’s wellbeing first. The Review Board includes experts from the fields of pediatric cardiology, cardiology, human genetics, basic research, ethics and medical law. They review any and all project proposals using donated data and samples from the National Register for Congenital Heart Defects, as well as data from the Study Database and the Image-Study Database of the Competence Network for Congenital Heart Defects.

The Review Board cooperates with the Data Access Committee, which consists of the Competence Network’s Steering Committee and the National Register’s Management Board. It advises the Committee regarding research proposals for basic research projects that are based on samples from the biorepository of the National Register for Congenital Heart Defects, as well as for clinical and register-based studies including data from the National Register. The board members review the research proposals considering criteria of basic research and healthcare, as well as in terms of ethics and medical law. Besides representatives from different fields, the board also includes representatives of patient and parent initiatives.

Chairpersons

  • Prof. Dr. med. Hans-Heiner Kramer, privat © privat

    Prof. Dr. med. Hans-Heiner Kramer

    Chair

    Hans-Heiner Kramer war bis zum 31. März 2019 Direktor der Klinik für angeborene Herzfehler und Kinderkardiologie am Universitätsklinikum Schleswig-Holstein, Campus Kiel.

  • Prof. Dr. Dr. med. Gerhard-Paul Diller, UKM © UKM

    Prof. Dr. Dr. med. Gerhard-Paul Diller

    Deputy Chair

    Gerhard-Paul Diller is a senior physician and a specialist in internal medicine and cardiology with additional qualification in ACHD (adult congenital heart disease). He practices at the Klinik für Kardiologie III: Center for Congenital and Acquired Heart Defects (EMAH) at the University Hospital Münster. He is a Visiting Professor at the Imperial College London. More

Members

  • Platzhalter Personenbild

    Prof. Dr. med. Jürgen Hörer

    Jürgen Hörer ist Direktor der Klinik für Chirurgie angeborener Herzfehler und Kinderherzchirurgie am Deutschen Herzzentrum München und Chefarzt der Sektion für Chirurgie angeborener Herzfehler und Kinderherzchirurgie an der Herzchirurgischen Klinik und Poliklinik des Klinikums der Universität München.

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