Join Our Research

Research Basis of the National Register

A Basis for Your Representative Studies

Including 55,000 participants, the National Register for Congenital Heart Defects is one of the largest patient databases in the field of congenital heart malformations worldwide. Patients and their biological relatives provide their data of diagnoses and courses of disease for research.

Research Basis of the National Register
Donated Data in the Register
Data Collection in the National Register

Diagnoses and courses of disease are observed, analyzed and processed for research on a long-term basis and in accordance with the highest scientific standards. In addition, many patients, as well as relatives, donate biological samples. Basic researchers can access the biological samples of currently approximately 8,000 sample donors, which are stored in the National Register Biobank.

Data Inventory and Data Collection

Data donated to the National Register for Congenital Heart Defects

Basic Data for Your Research

Get an overview of our data inventory here.

Data collection at the National Register

Patient Protection and Research Quality

Learn more about how we collect data.

Sample Inventory and Sample Collection

Samples donated to the National Register Biobank

Biosamples for Your Research

Get an overview of our sample inventory and phenotypic characteristics here.

Sample Management for Significant Research Results

Learn more about our sample collection and processing here.

Your Contact Persons

The National Register’s Study Management supports scientists with their research projects. From the research proposal up to the publication.

Dr. med. Ulrike Bauer

Scientific Managing Director of the research network

Phone: +49 30 45937277
E-Mail

PD Dr. rer. nat. Thomas Pickardt

Biologist, Research Management

Phone: +49 174 3420011
E-Mail

Dr. rer. medic. Paul Christian Helm

Scientist, Study Management

Phone: +49 30 45937277
E-Mail

Research Basis of the National Register