Patients

We Do Research for Your Heart.

There are many questions regarding congenital heart disease. Thanks to your donated data and samples, more and more of these are able to be answered. Over 60,000 children, adolescents and adults with congenital heart disease take part in the National Register.

Welcome to the Heart Register

Tanja, educator, 39 years old., Nationales Register | privat — Tanja, educator, 39 years old.

Tanja, educator, age 39

"After my heart valve surgery, I felt like the crocodile in Peter Pan."

Read Tanja’s story

Marc coming from his annual routine follow-up examination, Wolfram Scheible für Nationales Register — Marc coming from his annual routine follow-up examination

Marc, assistant tax consultant, 27 years

“When I was a child, I didn’t like the fact that I wasn’t allowed to do many things. I find life as an adult with congenital heart disease much easier.”

Read Marc’s story

Barbara with two of her Border Collies, Nationales Register | privat — Barbara with two of her Border Collies

Barbara, dog breeder, 54 years.

The doctor listened to my heartbeat and paused.

Read Barbara's story

Current Issues

Research at the Register

Father in skin-to-skin contact with his premature baby.

Research Projects | Medicine and Healthcare, Everyday Life

Child With Congenital Heart Defect? How Do Fathers Deal With It?

Nothing can prepare you for life with a child with a congenital heart defect. For the successful treatment of patients on the long term, the involvement of fathers is also crucial. We want to know more about this.

To the research project

Research Projects | Knowledge and Communication

Was bedeutet die Corona-Pandemie für AHF Patienten?

Wie beeinflusst Corona den Alltag von Menschen mit angeborenem Herzfehler? Dazu hat das Kompetenznetz in Anlehnung an COSMO eine zweite Umfrage gestartet.

Learn more

Wie gut ernähren sich Kinder und Jugendliche mit angeborenen Herzfehlern?

Research Projects | Gesundheit und Ernährung

Was gibt‘s denn zum Essen?

Zu fett, zu süß und davon zu viel. Immer mehr Kinder und Jugendliche in Deutschland ernähren sich unausgewogen. Bei angeborenen Herzfehlern kann ein solches Ernährungsverhalten besonders gefährlich werden. Das Kompetenznetz Angeborene Herzfehler hat jetzt eine Studie dazu gestartet.

Learn more

Results of our studies

Neugeborenes im Klinikbett. Eine Fallot Tetralogie wird heute möglichst schon im Säuglingsalter korrigiert.

Research Results | Medicine and Healthcare

Zu viel Druck auf die rechte Herzkammer

Die Fallot'sche Tetralogie (ToF) ist einer der häufigsten schweren Herzfehler. Vier verschiedene Fehlbildungen beeinträchtigen das Herz-Kreislauf-System. Wie entwickelt sich das Herz nach der Korrektur-Operation? Was sind vermeidbare Behandlungsrisiken? Eine neue Studie gibt Auskunft.

Zum Forschungsergebnis

Is your sex life not going well? You are not alone. For erectile dysfunction, consulting with an ACHD specialist can help.

Research Results | Medicine and Healthcare, Love, Sexuality and Pregnancy

And in bed? Is it only mediocre?

In men with congenital heart defects, erectile dysfunction often has different causes than in those with healthy hearts. And it occurs frequently. In most cases, something can be done about it. But it is rarely discussed.

To the research result

An elderly couple looks at a map while hiking.

Patients | Medicine and Healthcare, Healthcare Research

Growing Old With a Congenital Heart Defect?

OptAHF was the first comprehensive study to examine life with a congenital heart defect into old age. It is the largest care study ever conducted in this area. We interviewed those responsible for the study about the results.

To the heart researcher talk

In good hands at the pediatric heart center: parents with a heart-child.,

Each Heart Counts.

The more participants the better.

More than 60,000 children, adolescents adults with congenital heart disease contribute to medical research by donating their data and samples. The more patients take part the better the research conducted at the Register gets. Since better research leads to better healthcare, this also benefits the patients.

Find out what we can do together to enhance medical progress.

OptAHF-Spezial

Child With Congenital Heart Defect?

Become a Member

Microcephaly - a Risk?

Become a Member

Join Our Research

Research Duration: Many Lifetimes!

Donate for Medical Progress

Covid-19 Vaccination

Why We Do Research

We Do Research for Your Heart.

Welcome to the Heart Register

Current Issues

Smarter Through Whole Genome Sequencing?

Who is Treating Your Heart?

Updated Corona Special 2022

Julia Remmele awarded research prize

Nach Corona-Pause: 7. Watt-Moor-Ultra-60

Ausgezeichnet

Kiel Researchers Discover Further CHD Genes

DZHK Paper of the Month

Evaluierung des Pulsoxymetrie-Screenings gestartet

Anticoagulants in Patients with Congenital Heart Defects

Austausch, Beratung, Interessenvertretung bei AHF

New Corona Special

Abschied von einem Visionär

Children with Congenital Heart Defects Sit too Much

Widespread Participation in the Corona Survey

Wir trauern um Ingram Schulze-Neick

Schwere Herzfehlbildungen früh erkennen

DGPK Posterpreis für S-BAHn-Studie

Angeborene Herzfehler - ein unterschätztes Forschungsgebiet?

Paper of the Month

Wir sind soweit!

Startschuss für den 6. Watt-Moor-Ultra

Herzkinder sind gut in der Schule

KNAHF startet KI-Forschung

Rettung schwerstkranker Kinder bedroht

Herzschrittmacher: Zu teuer für ein Kind?

Neue Studie: Optimal versorgt bei AHF?

Neue Technologie erspart Kindern Herz-OP

Press Release | Medicine and Healthcare

Die Transition ist die große Hürde

Wissen Sie genug über Ihr Endokarditis-Risiko?

Endlich Pflicht: Pulsoxymetrie-Screening