Patients

We Do Research for Your Heart.

There are many questions regarding congenital heart disease. Thanks to your donated data and samples, more and more of these are able to be answered. Over 60,000 children, adolescents and adults with congenital heart disease take part in the National Register.

Welcome to the Heart Register

Tanja, educator, 39 years old., Nationales Register | privat — Tanja, educator, 39 years old.

Tanja, educator, age 39

"After my heart valve surgery, I felt like the crocodile in Peter Pan."

Read Tanja’s story

Marc coming from his annual routine follow-up examination, Wolfram Scheible für Nationales Register — Marc coming from his annual routine follow-up examination

Marc, assistant tax consultant, 27 years

“When I was a child, I didn’t like the fact that I wasn’t allowed to do many things. I find life as an adult with congenital heart disease much easier.”

Read Marc’s story

Barbara with two of her Border Collies, Nationales Register | privat — Barbara with two of her Border Collies

Barbara, dog breeder, 54 years.

The doctor listened to my heartbeat and paused.

Read Barbara's story

Current Issues

Research at the Register

Surviving cancer. Regular cancer screening increases the chances of cure, relief and prevention of CHD-related complications.

Research Projects | Medicine and Healthcare, Surveys

Cancer Risk in Congenital Heart Disease

Cancer is a particular risk for adults with congenital heart disease. Prevention and early detection are critical. How are these services accepted? What are the potential barriers? A new registry study gets to the bottom of these questions.

To the research project

Physician talking confidentially with a patient. The possibilities of palliative care and the patient's own wishes and fears should be discussed with the appropriately specialized doctors at an early stage.

Research Projects | Medicine and Healthcare

Optimal Care at the End of Life?

Good palliative care is important for all of us when needed - even in the case of incurable cardiovascular disease. But too few people take advantage of it. We are now conducting a study to find out why.

To the research project

Persistent pain in the legs, fatigue, headaches, and dizziness may indicate aortic coarctation.

Research Projects | Medicine and Healthcare

Between Two and 18: Surgery or Catheterization?

Aortic coarctation is one of the most common congenital heart defects. Timely correction of this malformation is essential for survival. Which procedure should be used in children over the age of two and adolescents?

About the Research Project

Results of our studies

Thanks to refined surgical techniques, transposition of the great arteries (TGA) can nowadays be well treated.

Research Results | Medicine and Healthcare, Cardiac Surgery

Rare Combination: TGA with "Hole in the Heart" and LVOTO

TGA is one of the most common serious congenital heart defects. Thanks to research, most of those affected can now live with it for a long time and increasingly better after correction. This is also true for the rare combination of TGA, VSD and LVOTO. However, many important questions remain unanswered.

To the research result

Swimming helps to prevent drowning and promotes heart health. This also applies to children with congenital heart defects.

Research Results | Exercise Capacity and Sports

Learn to Swim!

Like a fish in water? Learning to swim is good for everyone – it brings people together and is a life-saver. A recent study shows that too many children with congenital heart defects are not taught to swim. This is risky.

To the research result

There is a link between congenital heart defects and reduced body defense against pathogens.

Research Results | Medicine and Healthcare

Deadly Danger: Immune Deficiency in Congenital Heart Defects

Immune deficiency appears to be more common in congenital heart defects than previously thought. And it can be life-threatening. That's the finding of a new study based on data from the Barmer Health Insurance Fund.

To the research result

In good hands at the pediatric heart center: parents with a heart-child.,

Each Heart Counts.

The more participants the better.

More than 60,000 children, adolescents adults with congenital heart disease contribute to medical research by donating their data and samples. The more patients take part the better the research conducted at the Register gets. Since better research leads to better healthcare, this also benefits the patients.

Find out what we can do together to enhance medical progress.

OptAHF Special

Surgery or Catheterization?

Become a Member

Microcephaly - a Risk?

Become a Member

Join Our Research

Research Duration: Many Lifetimes!

Donate for Medical Progress

Covid-19 Vaccination

Why We Do Research

We Do Research for Your Heart.

Welcome to the Heart Register

Current Issues

Constanze Pfitzer receives the DGPK Science Award 2024

Better Medical Care into Old Age

Therapy Progress Only through Registry Research

Smarter Through Whole Genome Sequencing?

Who is Treating Your Heart?

Updated Corona Special 2022

Julia Remmele awarded research prize

Nach Corona-Pause: 7. Watt-Moor-Ultra-60

Ausgezeichnet

Kiel Researchers Discover Further CHD Genes

DZHK Paper of the Month

Evaluation of Pulse Oximetry Screening Started

Anticoagulants in Patients with Congenital Heart Defects

Austausch, Beratung, Interessenvertretung bei AHF

New Corona Special

Abschied von einem Visionär

Children with Congenital Heart Defects Sit too Much

Widespread Participation in the Corona Survey

Wir trauern um Ingram Schulze-Neick

Schwere Herzfehlbildungen früh erkennen

DGPK Posterpreis für S-BAHn-Studie

Angeborene Herzfehler - ein unterschätztes Forschungsgebiet?

Paper of the Month

Wir sind soweit!

Startschuss für den 6. Watt-Moor-Ultra

Herzkinder sind gut in der Schule

KNAHF startet KI-Forschung

Rettung schwerstkranker Kinder bedroht

Herzschrittmacher: Zu teuer für ein Kind?

Neue Studie: Optimal versorgt bei AHF?

Neue Technologie erspart Kindern Herz-OP

Press Release | Medicine and Healthcare

Die Transition ist die große Hürde

Wissen Sie genug über Ihr Endokarditis-Risiko?

Endlich Pflicht: Pulsoxymetrie-Screening

Research at the Register

Cancer Risk in Congenital Heart Disease

Optimal Care at the End of Life?

Between Two and 18: Surgery or Catheterization?

Results of our studies

Rare Combination: TGA with "Hole in the Heart" and LVOTO

Learn to Swim!

Deadly Danger: Immune Deficiency in Congenital Heart Defects

Each Heart Counts.

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