Pediatric heart surgeon during open heart surgery., Wolfram Scheible für Nationales Register

Physicians

Research Strengthens Practice.

Every two hours, physicians safe the life of a child with congenital heart disease. Our research efforts are aimed at assuring these children's wellbeing. From the first heart beat to old age.

Join the Research Network

Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist, Wolfram Scheible für Nationales Register — Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist

Prof. Dr. med. Tanja Rädle-Hurst, ACHD cardiologist

“We do our utmost to make sure that our patients reach old age; and that they do so well.”

Interview with the ACHD professor

Der Kinderkardiologe Dr. med. Arnulf Boysen aus Karlsruhe, Nationales Register | Karolina Sobel — Der Kinderkardiologe Dr. med. Arnulf Boysen aus Karlsruhe

Dr. med. Arnulf Boysen, pediatric cardiologist in private practice

“The idea of setting up such a register was overdue and I take my hat off to the Competence Network for succeeding in doing so.”

Interview with the pediatric cardiologist

Raúl, educator, 31 years old., Nationales Register | privat — Raúl, educator, 31 years old.

Raúl, pedagogue, 31 years

“Who today knows firsthand what it is like to get old with congenital heart disease?” That is yet to be found out.”

Read Raúl's story

Dates

5. bis 7. Oktober 2023

2023 DGK Heart Days in Bonn

The German Society of Cardiology/Cardiovascular Investigation (DGK) invites you to its Autumn Congress in Bonn.

Register here

About our Research Activities

There is a link between congenital heart defects and reduced body defense against pathogens.

Research Results | Medicine and Healthcare

Deadly Danger: Immune Deficiency in Congenital Heart Defects

Immune deficiency appears to be more common in congenital heart defects than previously thought. And it can be life-threatening. That's the finding of a new study based on data from the Barmer Health Insurance Fund.

To the research result

Antibodies attack viral cells in the bloodstream. New study shows: The risk of immunodeficiency is significantly higher in congenital heart disease than previously known.

Pressemitteilungen | Evidence-Based Medicine

Therapy Progress Only through Registry Research

Researchers are pushing for the promotion of registry-based research. The importance of this is also shown by the results of a new study: immunodeficiencies in congenital heart defects are significantly more common than previously assumed.

To the press release

Is your sex life not going well? You are not alone. For erectile dysfunction, consulting with an ACHD specialist can help.

Research Results | Medicine and Healthcare, Love, Sexuality and Pregnancy

And in bed? Is it only mediocre?

In men with congenital heart defects, erectile dysfunction often has different causes than in those with healthy hearts. And it occurs frequently. In most cases, something can be done about it. But it is rarely discussed.

To the research result

News From the Competence Network and the Register

Reliable reference values: percentile curves

Research Results

New Findings

What has been published recently? Which findings can be used as a basis for further research? What are the conclusions scientists draw from their results and how does that concern the individual patient?

Find all the information here.

Julia Remmele works and conducts research at the German Heart Center Munich.

Press Release | Personalie | Awards

Julia Remmele awarded research prize

With support from the National Registry, Julia Remmele has conducted research on sequelae in young adults with congenital heart defects. In June, the DGPR and the German Heart Foundation awarded her the Science Prize of the Kurt and Erika Palm Foundation 2022.

Learn more

Prof. Dr. med. Anselm Uebing is the new chairman of the board of the Competence Network for Congenital Heart Defects.

Press Release | Personalie

Generation Change at the Competence Network for Congenital Heart Defects

Anselm Uebing, a pediatric cardiologist from Kiel, Germany, speaks for the Competence Network for Congenital Heart Defects as the new chairman of the board and thus for one of the world's largest research networks in this field.

To the press release

Taking Part in the Competence Network’s Research Activities

Join Our Research

More Safety for Patients

All pediatric heart centers in Germany have joined the National Quality Assurance to enable a swift transfer of treatment and operation standards.

Joint Effort for Quality Assurance

A teenage jogger holds her chest, her face contorted in pain.

Join Our Research

Mykke Research

Too small alone? A single mosquito can achieve big things. Particularly so when joining forces with others. The multicenter register MYKKE serves to answer open questions related to epidemiology, diagnostics and treatment of the disease.

Would You Like to Join Us?

View into a research laboratory through an emergency fire door.

Join Our Research

Who is Involved in Our Research Activities?

At the National Register, research takes place at an international level. Let us take a look at a world map of research in congenital heart disease and go talk to those involved in doctor’s rooms and laboratories.

Learn more

Young patient having an ultrasound examination.,

Our Research is Needed.

It pays to take part.

At the Competence Network for Congenital Heart Defects we conduct research together. For a swift transfer from research into practice. Benefit from a strong research network for the benefit of your patients.

Are you onboard?

Become a member now.

OptAHF-Spezial

Child With Congenital Heart Defect?

Become a Member

Microcephaly - a Risk?

Become a Member

Join Our Research

Research Duration: Many Lifetimes!

Donate for Medical Progress

Covid-19 Vaccination

Why We Do Research

Research Strengthens Practice.

Join the Research Network

Dates

2023 DGK Heart Days in Bonn

About our Research Activities

Deadly Danger: Immune Deficiency in Congenital Heart Defects

Therapy Progress Only through Registry Research

And in bed? Is it only mediocre?

News From the Competence Network and the Register

New Findings

Julia Remmele awarded research prize

Generation Change at the Competence Network for Congenital Heart Defects

Taking Part in the Competence Network’s Research Activities

More Safety for Patients

Mykke Research

Who is Involved in Our Research Activities?

Our Research is Needed.

Share this page via ...