Pediatric heart surgeon during open heart surgery., Wolfram Scheible für Nationales Register

Physicians

Research Strengthens Practice.

Every two hours, physicians safe the life of a child with congenital heart disease. Our research efforts are aimed at assuring these children's wellbeing. From the first heart beat to old age.

Join the Research Network

Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist, Wolfram Scheible für Nationales Register — Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist

Prof. Dr. med. Tanja Rädle-Hurst, ACHD cardiologist

“We do our utmost to make sure that our patients reach old age; and that they do so well.”

Interview with the ACHD professor

Der Kinderkardiologe Dr. med. Arnulf Boysen aus Karlsruhe, Nationales Register | Karolina Sobel — Der Kinderkardiologe Dr. med. Arnulf Boysen aus Karlsruhe

Dr. med. Arnulf Boysen, pediatric cardiologist in private practice

“The idea of setting up such a register was overdue and I take my hat off to the Competence Network for succeeding in doing so.”

Interview with the pediatric cardiologist

Raúl, educator, 31 years old., Nationales Register | privat — Raúl, educator, 31 years old.

Raúl, pedagogue, 31 years

“Who today knows firsthand what it is like to get old with congenital heart disease?” That is yet to be found out.”

Read Raúl's story

Dates

About our Research Activities

Neugeborenes im Klinikbett. Eine Fallot Tetralogie wird heute möglichst schon im Säuglingsalter korrigiert.

Research Results | Medicine and Healthcare

Zu viel Druck auf die rechte Herzkammer

Die Fallot'sche Tetralogie (ToF) ist einer der häufigsten schweren Herzfehler. Vier verschiedene Fehlbildungen beeinträchtigen das Herz-Kreislauf-System. Wie entwickelt sich das Herz nach der Korrektur-Operation? Was sind vermeidbare Behandlungsrisiken? Eine neue Studie gibt Auskunft.

Zum Forschungsergebnis

Is your sex life not going well? You are not alone. For erectile dysfunction, consulting with an ACHD specialist can help.

Research Results | Medicine and Healthcare, Love, Sexuality and Pregnancy

And in bed? Is it only mediocre?

In men with congenital heart defects, erectile dysfunction often has different causes than in those with healthy hearts. And it occurs frequently. In most cases, something can be done about it. But it is rarely discussed.

To the research result

An elderly couple looks at a map while hiking.

Patients | Medicine and Healthcare, Healthcare Research

Growing Old With a Congenital Heart Defect?

OptAHF was the first comprehensive study to examine life with a congenital heart defect into old age. It is the largest care study ever conducted in this area. We interviewed those responsible for the study about the results.

To the heart researcher talk

News From the Competence Network and the Register

Reliable reference values: percentile curves

Research Results

New Findings

What has been published recently? Which findings can be used as a basis for further research? What are the conclusions scientists draw from their results and how does that concern the individual patient?

Find all the information here.

Julia Remmele works and conducts research at the German Heart Center Munich.

Press Release | Personalie | Awards

Julia Remmele awarded research prize

With support from the National Registry, Julia Remmele has conducted research on sequelae in young adults with congenital heart defects. In June, the DGPR and the German Heart Foundation awarded her the Science Prize of the Kurt and Erika Palm Foundation 2022.

Learn more

Prof. Dr. med. Anselm Uebing is the new chairman of the board of the Competence Network for Congenital Heart Defects.

Press Release | Personalie

Generation Change at the Competence Network for Congenital Heart Defects

Anselm Uebing, a pediatric cardiologist from Kiel, Germany, speaks for the Competence Network for Congenital Heart Defects as the new chairman of the board and thus for one of the world's largest research networks in this field.

To the press release

Taking Part in the Competence Network’s Research Activities

Join Our Research

More Safety for Patients

All pediatric heart centers in Germany have joined the National Quality Assurance to enable a swift transfer of treatment and operation standards.

Joint Effort for Quality Assurance

Jugendliche Joggerin im Wald fasst sich mit schmerzverzerrtem Gesicht in der Herzgegend an die Brust.

Join Our Research

Mykke researches

Too small alone? A single mosquito can achieve big things. Particularly so when joining forces with others. The multicenter register MYKKE serves to answer open questions related to epidemiology, diagnostics and treatment of the disease.

Would You Like to Join Us?

View into a research laboratory through an emergency fire door.

Join Our Research

Who is Involved in Our Research Activities?

At the National Register, research takes place at an international level. Let us take a look at a world map of research in congenital heart disease and go talk to those involved in doctor’s rooms and laboratories.

Learn more

Young patient having an ultrasound examination.,

Our Research is Needed.

It pays to take part.

At the Competence Network for Congenital Heart Defects we conduct research together. For a swift transfer from research into practice. Benefit from a strong research network for the benefit of your patients.

Are you onboard?

Become a member now.