Conducting research with data and samples from the National Register, Wolfram Scheible für Nationales Register

Researchers

We Turn Visions into Reality.

Over 200 scientists conduct research at the Competence Network for Congenital Heart Defects for quality of life in congenital heart disease. Each research success is a contribution.

Taking Part in the Competence Network’s Research Activities

Pediatric cardiologist Prof. Dr. med. Christian Apitz, Universitätsklinikum Ulm — Pediatric cardiologist Prof. Dr. med. Christian Apitz

Prof. Dr. med. Christian Apitz, pediatric cardiologist

“The Register’s comprehensive data collection can be trusted to be significant. Without it, representative studies would be impossible.”

Learn more about his study

Human geneticist Dr. Anne-Karin Kahlert, Nationales Register | privat — Human geneticist Dr. Anne-Karin Kahlert

Dr. Anne-Karin Kahlert, human geneticist

“Our basic research requires a reliable sample base. The Register has our back so that we can focus on the actual research. To us that means a huge relief.”

Learn more about her project

ACHD researcher Prof. Dr. Dr. med. Gerhard-Paul Diller, Nationales Register | UKM — ACHD researcher Prof. Dr. Dr. med. Gerhard-Paul Diller

Prof. Dr. Dr. med. Gerhard-Paul Diller, ACHD researcher

“Over 50,000 register members donate their data and samples. This is a big act of faith, which places a great responsibility on us.”

Go to "Meet the Researcher"

Dates

Results from our Research Activities

Register ermöglichen Erforschung angeborener Herzfehler über die gesamte Lebensspanne hinweg. Kinderzeichnung: ein Kind, ein Erwachsener, ein älterer Mensch.

Research Results | Medicine and Healthcare

Richtungswechsel in der AHF-Forschung

Über die Lebenszeitperspektive von Erwachsenen mit angeborenen Herzfehlern ist noch zu wenig bekannt. Eine neue Studie zeigt die Chancen der registerbasierten Forschung über die gesamte Lebensspanne hinweg. Doch sie müssen auch genutzt werden.

Zum Forschungsergebnis

Bildgebende Verfahren, EKG und Blutuntersuchung gehören zur Diagnostik bei einer Herzmuskelentzündung.

Research Results | Genetics

Myokarditis: Gendefekte bei Kindern entdeckt

Die Myokarditis ist eine ernste Erkrankung, die zu schwerer Herzschwäche und zum plötzlichen Herztod führen kann. Eine jüngste Studie kam nun erstmals Gendefekten auf die Spur, die wichtige Hinweise für die Diagnostik liefern, eine Chance für die Früherkennung schwerer Verläufe und ihre verbesserte Behandlung.

Zum Forschungsergebnis

Prof. Dr. med. Hashim Abdul-Khaliq, Speaker of the Competence Network, talking to Dr. med. Ulrike Bauer, Managing Director of the Competence Network for Congenital Heart Defects.

Researchers

Research Creates Future.

Already today, numerous findings from research are being utilized in practice, resulting in an improved health care for those affected. What have we achieved? Which research questions are We currently tackling?

Projects and Results of Our Research Activities

Doing Research with Us

Researcher catches drop from a pipet with a spoon.

Researchers

Join Our Research

Focus on your research. We provide the basics.

Join our research effort

View into a research laboratory through an emergency fire door.

About Us

Who is Involved in Our Research Activities?

Research on the basis of the Register is conducted worldwide. Learn more about the researchers and their projects.

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Researchers discussing charts for a publication

About Us

Publications

Thanks to our research results, improvements in diagnostics, treatment and care are already happening today.

Get an overview here

Services and Facilities

More than 55,000 participants have donated their data for research.

Join Our Research

Research Basis of the National Register

From the single project to the multicenter study: More than 55,000 patients and their families enable efficient and successful research by donating their data and samples.

Learn more about the data inventories

Staff member of the Central Biobank Charité, Berlin (ZeBanC) uses a robot to isolate DNA from blood samples of the National Register.

Join Our Research

The National Register Biobank

Our biorepository provides you with biomaterial from roughly 8,000 sample donors for basic research.

Learn more about the sample inventories

Dr. med. Ulrike Bauer, Managing Director of the Competence Network for Congenital Heart Defects, talking to Prof. Dr. rer. nat. Michael Hummel, Director of the Central Biobank Charité (ZeBanC).

Join Our Research

Initiating Projects

You are planning a research project that could use our data and samples? We support you with every step from your project idea up to the publication.

Join our research effort!

Young patient proudly presents his ultrasound image,

Research Creates Future

Enabling Innovations

Each research success means one more contribution to improving the quality of life of children, adolescents and adults with congenital heart disease. The more physicians and scientists take part in our research effort the better.

Want to be Part of our Research Effort?

Submit a research proposal here.

We Turn Visions into Reality.

Taking Part in the Competence Network’s Research Activities

Dates

10. Mitgliederversammlung des KNAHF in Berlin

16. Mitgliederversammlung des NRAHF in Berlin