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Research Basis of the National Register
A Basis for Your Representative Studies
Including 55,000 participants, the National Register for Congenital Heart Defects is one of the largest patient databases in the field of congenital heart malformations worldwide. Patients and their biological relatives provide their data of diagnoses and courses of disease for research.
- Research Basis of the National Register
- Donated Data in the Register
- Data Collection in the National Register
Diagnoses and courses of disease are observed, analyzed and processed for research on a long-term basis and in accordance with the highest scientific standards. In addition, many patients, as well as relatives, donate biological samples. Basic researchers can access the biological samples of currently approximately 8,000 sample donors, which are stored in the National Register Biobank.
Data Inventory and Data Collection
Sample Inventory and Sample Collection
Your Contact Persons
The National Register’s Study Management supports scientists with their research projects. From the research proposal up to the publication.
Dr. med. Ulrike Bauer
Scientific Managing Director of the research networkPhone: +49 30 45937277