More than 55,000 participants have donated their data for research., Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

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Research Basis of the National Register

A Basis for Your Representative Studies

Including 55,000 participants, the National Register for Congenital Heart Defects is one of the largest patient databases in the field of congenital heart malformations worldwide. Patients and their biological relatives provide their data of diagnoses and courses of disease for research.

Diagnoses and courses of disease are observed, analyzed and processed for research on a long-term basis and in accordance with the highest scientific standards. In addition, many patients, as well as relatives, donate biological samples. Basic researchers can access the biological samples of currently approximately 8,000 sample donors, which are stored in the National Register Biobank.

Your Contact Persons

The National Register’s Study Management supports scientists with their research projects. From the research proposal up to the publication.

Dr. med. Ulrike Bauer, Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

Dr. med. Ulrike Bauer

Scientific Managing Director of the research network

Phone: +49 30 45937277
E-Mail
PD Dr. rer. nat. Thomas Pickardt, Lotte Barthelmes © Lotte Barthelmes

PD Dr. rer. nat. Thomas Pickardt

Biologe, Forschungsmanagement

Phone: +49 30 45937279
E-Mail
Dipl.-Psych. Paul Christian Helm, Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

Dipl.-Psych. Paul Christian Helm

Wissenschaftler, Studienmanagement

Phone: +49 30 45937277
E-Mail

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