Mother and child with nose and face mask In times of the pandemic with the novel coronavirus, we are used to views like this from our everyday life., iStockphoto.com | FamVeld © iStockphoto.com | FamVeld

Medicine and Healthcare

Corona Patient Survey

Life With the Pandemic

Scientific name of the study

Life with the Covid-19/SARS-CoV-2 Pandemic. Impact of the Worldwide Infection Wave on Patients with Congenital Heart Disease and Children with Acquired Heart Disease.

The global wave of infection with the novel coronavirus has a massive impact on our everyday life. Currently, experts assume that it will take at least 18 months for a vaccine to be available. Slowing down the spread and protecting the health of particularly vulnerable risk groups has priority over everything else now. The current exceptional situation presents particular challenges to those who have children with congenital or acquired heart disease or who are affected themselves.

We would like to find out how children and adolescents with congenital and acquired heart disease, as well as adults with congenital heart disease, are impacted individually by the pandemic with the novel coronavirus.

3,558 Participants

How does the situation affect their medical care? How well informed and protected do those affected feel? How do they assess their risks? And how do they themselves deal with the situation? Which strategies help to cope with the current exceptional state and what impact does that have on the own quality of life? We are currently seeking answers to these questions on the basis of a nationwide online survey. The survey was open in April and 3,558 adolescents and adults with congenital heart disease, as well as parents and legal guardians of children with congenital or acquired heart disease took part.

We Would Like to Thank You!

By the end of our survey on April 30, many of you had taken the time of 20 minutes to answer our questions. In addition, many participants supported us by sharing our call for participation in the survey in the social networks. We would like to thank you for making this possible. With our research we are striving to create a further important basis to help improve the state of information, medical care and prevention. Your answers greatly contribute to our research. We have started evaluating the collected data and will get back to you with the results.

In charge of the project:

  • Prof. Dr. med. Hashim Abdul-Khaliq, Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

    Prof. Dr. med. Hashim Abdul-Khaliq

    Hashim Abdul-Khaliq is the Director of the Klinik für Kinderkardiologie at the Saarland University Hospital. More

    Universitätsklinikum des Saarlandes
    Klinik für pädiatrische Kardiologie

    Kirrberger Str.
    Gebäude 9
    66421 Homburg / Saar
  • Dr. med. Ulrike Bauer, Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

    Dr. med. Ulrike Bauer

    Ulrike Bauer is the Scientific Managing Director of the National Register for Congenital Heart Defects and the Competence Network for Congenital Heart Defects. More

    Kompetenznetz Angeborene Herzfehler e. V.
    Netzwerkzentrale

    Augustenburger Platz 1
    13353 Berlin
  • Prof. Dr. Dr. med. Gerhard-Paul Diller, UKM © UKM

    Prof. Dr. Dr. med. Gerhard-Paul Diller

    Gerhard-Paul Diller is a senior physician and a specialist in internal medicine and cardiology with additional qualification in ACHD (adult congenital heart disease). He practices at the Klinik für Kardiologie III: Center for Congenital and Acquired Heart Defects (EMAH) at the University Hospital Münster. He is a Visiting Professor at the Imperial College London. More

    Universitätsklinikum Münster
    Klinik für Kardiologie III: Angeborene Herzfehler (EMAH) und Klappenerkrankungen

    Albert-Schweitzer-Campus 1
    48149 Münster
  • Dr. rer. medic. Paul Christian Helm, Dipl.-Psych., Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

    Dr. rer. medic. Paul Christian Helm

    Kompetenznetz Angeborene Herzfehler e. V.
    Netzwerkzentrale

    Augustenburger Platz 1
    13353 Berlin
  • PD Dr. med. Stefan Orwat, Fotozentrale © Fotozentrale

    PD Dr. med. Stefan Orwat

    Stefan Orwat is senior physician and specialist for internal medicine and cardiology with additional qualification ACHD at the Clinic for Cardiology III: Congenital Heart Defects (ACHD) and Valve Diseases at Münster University Hospital. More

    Universitätsklinikum Münster
    Klinik für Kardiologie III: Angeborene Herzfehler (EMAH) und Klappenerkrankungen

    Albert-Schweitzer-Campus 1
    48149 Münster

Contact person:

  • Dr. med. Ulrike Bauer, Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

    Dr. med. Ulrike Bauer

    Ulrike Bauer is the Scientific Managing Director of the National Register for Congenital Heart Defects and the Competence Network for Congenital Heart Defects. More

    Kompetenznetz Angeborene Herzfehler e. V.
    Netzwerkzentrale

    Augustenburger Platz 1
    13353 Berlin
  • Dr. rer. medic. Paul Christian Helm, Dipl.-Psych., Wolfram Scheible für Nationales Register © Wolfram Scheible für Nationales Register

    Dr. rer. medic. Paul Christian Helm

    Kompetenznetz Angeborene Herzfehler e. V.
    Netzwerkzentrale

    Augustenburger Platz 1
    13353 Berlin

You might also be interested in this:


Share this page via ...