Medicine and Healthcare
Corona Patient Survey
Life With the Pandemic
Scientific name of the study
Life with the Covid-19/SARS-CoV-2 Pandemic. Impact of the Worldwide Infection Wave on Patients with Congenital Heart Disease and Children with Acquired Heart Disease.
The global wave of infection with the novel coronavirus has a massive impact on our everyday life. Currently, experts assume that it will take at least 18 months for a vaccine to be available. Slowing down the spread and protecting the health of particularly vulnerable risk groups has priority over everything else now. The current exceptional situation presents particular challenges to those who have children with congenital or acquired heart disease or who are affected themselves.
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What’s Important to Know
How Can I Protect Myself as a Heart Patient?
How can I protect myself as a heart patient? Be cautious, but don’t panic. This is heart experts’ recommendation regarding the novel coronavirus. Find more detailed information about risk groups and the recommendations of heart experts in our continuously updated patient information.
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We would like to find out how children and adolescents with congenital and acquired heart disease, as well as adults with congenital heart disease, are impacted individually by the pandemic with the novel coronavirus.
3,558 Participants
How does the situation affect their medical care? How well informed and protected do those affected feel? How do they assess their risks? And how do they themselves deal with the situation? Which strategies help to cope with the current exceptional state and what impact does that have on the own quality of life? We are currently seeking answers to these questions on the basis of a nationwide online survey. The survey was open in April and 3,558 adolescents and adults with congenital heart disease, as well as parents and legal guardians of children with congenital or acquired heart disease took part.
We Would Like to Thank You!
By the end of our survey on April 30, many of you had taken the time of 20 minutes to answer our questions. In addition, many participants supported us by sharing our call for participation in the survey in the social networks. We would like to thank you for making this possible. With our research we are striving to create a further important basis to help improve the state of information, medical care and prevention. Your answers greatly contribute to our research. We have started evaluating the collected data and will get back to you with the results.
In charge of the project:
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Prof. Dr. med. Hashim Abdul-Khaliq
Hashim Abdul-Khaliq is the Director of the Klinik für Kinderkardiologie at the Saarland University Hospital. More
After graduating and earning his doctorate at the Hannover Medical School, Hashim Abdul-Khaliq was initially based at the department of neonatology of the pediatric clinic at Auguste-Viktoria-Klinikum Berlin for three years. After that, he worked with the Department of Congenital Heart Disease – Pediatric Cardiology at Deutsches Herzzentrum Berlin for twelve years. For the past six years, he has been a senior physician there. After qualifying as a professor at the Humboldt-Universität (Berlin), he accepted a call to the Klinik für Kinderkardiologie at the Saarland University Hospital. Hashim Abdul-Khaliq is a member of the German Society of Paediatric Cardiology (DGPK), the German Cardiac Society (DGK) and the Association for European Paediatric and Congenital Cardiology (AEPC). The pediatric cardiologist additionally advises the patient associations as a member of the medical-scientific board of Marfan Hilfe (Deutschland) e. V., as well as of the advisory board of the Bundesverband Herzkranke Kinder e. V. Hashim Abdul-Khaliq is a member and the Chair of the Competence Network for Congenital Heart Defects Executive Board. He also acts as a member of the research network’s Steering Committee.
Universitätsklinikum des Saarlandes
Klinik für pädiatrische Kardiologie
Kirrberger Str.
Gebäude 9
66421 Homburg / Saar -
Dr. med. Ulrike Bauer
Ulrike Bauer, born in 1958, is the Scientific Managing Director of the National Register for Congenital Heart Defects and the Competence Network for Congenital Heart Defects. More
Ulrike Bauer studied human medicine at the Humboldt University of Berlin. After finishing her doctorate on echocardiography in congenital heart disease, she was a resident for internal medicine at the county hospital in Chemnitz, after which she transferred to the Institute for Cardiovascular Diagnostics at the Charité Berlin. From there she transferred to the department of pediatric cardiology at the German Heart Center, Berlin (Deutsches Herzzentrum Berlin). Under the guidance of Prof. Dr. Peter E. Lange, Ulrike Bauer started setting up a nationwide register for congenital heart disease. The initiative by Prof. Dr. Peter E. Lange lead to the founding of the association of the National Register for Congenital Heart Defects. It was jointly supported by the board of trustees of Deutsches Herzzentrum Berlin and the cardiac societies, as well as by parent and patient associations. The same year was also the kick-off for creating the Competence Network for Congenital Heart Defects, which could took place thanks to government grants. Ulrike Bauer is a member of the German Society of Paediatric Cardiology (DGK), the European Society of Cardiology (ESC), the German Cardiac Society (DGK) and the Association for European Paediatric and Congenital Cardiology (AEPC).
Kompetenznetz Angeborene Herzfehler e. V.
Network Headquarters
Augustenburger Platz 1
13353 Berlin -
Prof. Dr. Dr. med. Gerhard-Paul Diller
Gerhard-Paul Diller is a senior physician and a specialist in internal medicine and cardiology with additional qualification in ACHD (adult congenital heart disease). He practices at the Klinik für Kardiologie III: Center for Congenital and Acquired Heart Defects (EMAH) at the University Hospital Münster. He is a Visiting Professor at the Imperial College London. More
Gerhard-Paul Diller studied medicine at the Ludwig-Maximilians University in Munich and he received much of his clinical training in Great Britain, at the Royal Brompton Hospital, London. In his research, the certified ACHD expert focuses on adults with congenital heart disease and pulmonary hypertension. In addition, he holds a Master’s degree (M.Sc.) in Health Economics Policy and Management from the London School of Economics, London, UK. Gerhard-Paul Diller is an executive board member of both the European Heart Rhythm Association and the ESC-Working-Group Grown Up Congenital Heart Disease. Furthermore, he is the deputy chair of the AG 9 Kongenitale Herzfehler (working group on congenital heart disease) of the German Cardiac Society (DGK). Gerhard-Paul Diller is a member of the Competence Network for Congenital Heart Defects where he is also a member of the Review Board.
Universitätsklinikum Münster
Klinik für Kardiologie III: Angeborene Herzfehler (EMAH) und Klappenerkrankungen
Albert-Schweitzer-Campus 1
48149 Münster -
PD Dr. med. Stefan Orwat
Stefan Orwat is senior physician and specialist for internal medicine and cardiology with additional qualification ACHD at the Clinic for Cardiology III: Congenital Heart Defects (ACHD) and Valve Diseases at Münster University Hospital. More
Stefan Orwat completed his medical studies at the Westfälische Wilhelms-Universität (WWU) Münster. In 2004 he received his doctorate here with his dissertation on "Cardiovascular Phenotyping of a Small Animal Model with Autosomal Dominant Polycystic Kidney Disease Type 2 (ADPKD2)" under Professor Dr. med. h.c. Günter Breithardt. In 2018, the specialist for internal medicine and cardiology and ACHD certified expert for adults with congenital heart defects was awarded the venia legendi for internal medicine by the medical faculty of the EMU. As senior physician, the trained emergency physician at the University Hospital Münster has been in charge of the outpatient department of the Clinic for Cardiology III: Congenital Heart Defects (ACHD) and Valve Diseases since 2016, and since 2018 also of the echocardiography of the Clinics for Cardiology I-III. Stefan Orwat is a member of the German Society of Cardiology - Heart and Circulation Research (DGK), the European Society of Cardiology (ESC) and here the European Assocation for Cardiovascular Imaging, the ESC Working Group on Grown-Up Congenital Heart Disease and the ESC Working Group on Valvular Heart Disease.
Contact person:
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Dr. med. Ulrike Bauer
Ulrike Bauer, born in 1958, is the Scientific Managing Director of the National Register for Congenital Heart Defects and the Competence Network for Congenital Heart Defects. More
Ulrike Bauer studied human medicine at the Humboldt University of Berlin. After finishing her doctorate on echocardiography in congenital heart disease, she was a resident for internal medicine at the county hospital in Chemnitz, after which she transferred to the Institute for Cardiovascular Diagnostics at the Charité Berlin. From there she transferred to the department of pediatric cardiology at the German Heart Center, Berlin (Deutsches Herzzentrum Berlin). Under the guidance of Prof. Dr. Peter E. Lange, Ulrike Bauer started setting up a nationwide register for congenital heart disease. The initiative by Prof. Dr. Peter E. Lange lead to the founding of the association of the National Register for Congenital Heart Defects. It was jointly supported by the board of trustees of Deutsches Herzzentrum Berlin and the cardiac societies, as well as by parent and patient associations. The same year was also the kick-off for creating the Competence Network for Congenital Heart Defects, which could took place thanks to government grants. Ulrike Bauer is a member of the German Society of Paediatric Cardiology (DGK), the European Society of Cardiology (ESC), the German Cardiac Society (DGK) and the Association for European Paediatric and Congenital Cardiology (AEPC).
Kompetenznetz Angeborene Herzfehler e. V.
Network Headquarters
Augustenburger Platz 1
13353 Berlin