Parents with a heart-child., Wolfram Scheible für Nationales Register

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Single congenital heart defects are rare.
Yet, many have to face a life with such an anomaly.
Together we can find ways to help making life with such a condition better. Thank you for supporting our research network.

Support and Donations

© Nationales Register | privat
Prof. Dr. med. Boulos Asfour

Prof. Dr. med. Boulos Asfour, Chair of the National Register for Congenital Heart Defects Executive Board

“Close research collaboration of pediatrics and adult medicine is the only way to promote a clinical practice that increases the single patient’s quality of life.”
© Nationales Register | Lotte Barthelmes
Jonas is the 50,000th "Heart Expert" in the Register

Jonas, 3 years

„Jonas leistet Großes für die Forschung.“
© WWU | Thomas Mohn
Karla Völlm

Karla Völlm, benefactor and honorary consul of the WWU

“This research is important and achieves great things for heart medicine in general.”
© Friede Springer Stiftung
Dr. h.c. Friede Springer

Dr. h.c. Friede Springer, founding patron of the research network

“I am impressed by the research that has been achieved to this day at the Competence Network for Congenital Heart Defects and by how much of its results have already been able to be incorporated in an improved healthcare.”
© Nationales Register | Karolina Sobel
Der Kinderkardiologe Dr. med. Arnulf Boysen aus Karlsruhe

Dr. med. Arnulf Boysen, pediatric cardiologist in private practice

“The idea of setting up such a register was overdue and I take my hat off to the Competence Network for succeeding in doing so.”
© Paul Ripke
Jan Delay

Jan Delay, musician

“I support independent research that actually benefits those who rely on it to survive. Solidary and collaborative research that overcomes boundaries, also in one’s own mind.”
© DZHK
Prof. Dr. med. Marc-Phillip Hitz

Prof. Dr. med. Marc-Phillip Hitz, human geneticist

“The Competence Network provides ideal conditions to conduct independent research that conforms to ethical standards and yields verifiable results.”
©

Prof. Dr. Dr. med. Gerhard-Paul Diller, ACHD researcher

“Over 50,000 register members donate their data and samples. “This is a big act of faith, which places a great responsibility on us.”
© Wolfram Scheible für Nationales Register
Prof. Dr. Tanja Rädle-Hurst, ACHD cardiologist

Prof. Dr. med. Tanja Rädle-Hurst, ACHD cardiologist

“We do our utmost to make sure that our patients reach old age; and that they do so well.
© Wolfram Scheible für Nationales Register
Dr. med. Ulrike Bauer, Wissenschaftliche Geschäftsführerin des Forschungsverbundes

Dr. med. Ulrike Bauer, Scientific Managing Director of the research network

“Congenital heart disease cannot be taken off like a coat.”
© Wolfram Scheible für Nationales Register
Prof. Dr. med. Hashim Abdul-Khaliq

Prof. Dr. med. Hashim Abdul-Khaliq, Chair of the Competence Network for Congenital Heart Defects Executive Board

“I am deeply convinced that we can accomplish much for the future of heart medicine.”
© Nationales Register | privat
Helena, mechanical engineering student, 21 years.

Helena, engineering student, 21 years

"All in all, I'm living a very normal life."
©
Dr. med. Anne-Karin Kahlert

Dr. Anne-Karin Kahlert, human geneticist

“The Register has our back so that we can focus on the actual research. To us that means a huge relief.”
© Universitätsklinikum Ulm
Prof. Dr. med. Christian Apitz

Prof. Dr. med. Christian Apitz, pediatric cardiologist

“The Register’s comprehensive data collection can be trusted to be significant. Without it, representative studies would be impossible.”
© Wolfram Scheible für Nationales Register
Marc coming from his annual routine follow-up examination

Marc, assistant tax consultant, 27 years

“When I was a child, I didn’t like the fact that I wasn’t allowed to do many things. I find life as an adult with congenital heart disease much easier.”
© Nationales Register | privat
Tanja, educator, 39 years old.

Tanja, educator, 39 years

"After my heart valve surgery, I felt like the crocodile in Peter Pan."
© Nationales Register | privat
Raúl, educator, 31 years old.

Raúl, pedagogue, 31 years

"Even today, I look at things very closely. Maybe that has to do with that experience."
© Nationales Register | privat
Sarah, medical student, 24 years old.

Sarah, medical student, 24 years

"With my story, I want to encourage other families."

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