News

22.02.2010 | News

Milestone in standards of care for individuals with congenital heart defects

The German societies of cardiac surgeons and paediatric cardiologists have heartily welcomed the announcement of the decision by the Joint Federal Committee to lay down binding quality standards and structures in respect of cardiac surgery for children and young people.   read more …

22.01.2010 | Press release

How large is the heart of a child?

In a research project of the Competence Network for Congenital Heart Defects reference values for ventricular size and mass of children and adolescents were ascertained for the first time. The study appears in Circulation: Cardiovascular Imaging.  read more …

22.01.2010 | Press release

Quality of MRI tests varies widely

Measurements in cardiac function by magnetic resonance imaging conceal a high potential for error. International Science team reports in the journal of Magnetic Resonance Imaging.  read more …

26.06.2008 | News, Press release

Professor Breithardt designated as new competence network spokesman

Professor Peter E. Lange has resigned from office as spokesman of the Competence Network for Congenital Heart Defects. The chairman of the Executive Board, Professor Günter Breithardt, will assume these duties in an acting capacity.   read more …

15.05.2008 | News, Events

Competence Network for Congenital Heart Defects at the 43rd Annual Meeting AEPC

During the 43rd Annual Meeting AEPC the Competence Network for Congenital Heart defects will showcase itself with an information stand and scientific lectures.   read more …

Patient information

Living with a heart defect

One in every hundred babies is born with a heart defect – there are currently around 300,000 people in Germany living with this condition. However, having a congenital heart defect can sometimes present major challenges, and it certainly throws up a lot of questions. How resilient is someone who has a heart defect? Can they have children despite their condition? And are heart defects curable?

Corience is an information portal dedicated to congenital heart defects, which aims to help answer such questions. The website provides independent information on the different heart malformations that can occur, their treatment, and how to live with a heart defect. In-depth reports, personal stories, interviews with experts and background articles all provide practical hints and tips to make living with the condition a little easier. On our Patients page, we’ve collated a list of topics that are dealt with on the Corience website.

read more …

PAN study to be continued

First Germany-wide study on the prevalence of congenital heart defects in newborn infants to be continued. read more …

Data for actions – Actions for data

Patients with congenital heart defects can join the National Register for Congenital Heart Defects. More than 27,000 children, adolescents and adults from all over Germany are already listed in the register. read more …

Upcoming events

55. GMDS Jahrestagung

05.09.10 - 09.09.10, Mannheim

9. Kongress für Versorgungsforschung

30.09.10 - 02.10.10, Bonn

Herbsttagung der DKG 2010

07.10.10 - 09.10.10, Nürnberg

Medica 2010

17.11.10 - 20.11.10, Düsseldorf